Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anti Ttg Iga Levels Positive


Nannu

Recommended Posts

Nannu Rookie

Hi,

Has anyone ever come across any reason/allergy/intolerence etc. other than gluten intolerence which results in anti TTG IGA levels highly positive?

Please do take a sec to reply to this question if you have the answer. I am not getting into details of my long story here, but i guess any answers to this would really open path for me in some positive direction.

Thanks in advance

Nannu


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pain*in*my*gut Apprentice

Hi,

Has anyone ever come across any reason/allergy/intolerence etc. other than gluten intolerence which results in anti TTG IGA levels highly positive?

Please do take a sec to reply to this question if you have the answer. I am not getting into details of my long story here, but i guess any answers to this would really open path for me in some positive direction.

Thanks in advance

Nannu

From American Celiac.org......

One negative aspect of the TTG antibody is that it can be falsely positive in a patient who has another autoimmune condition. TTG false positivity has been described in patients with both type I diabetes and autoimmune hepatitis. Theoretically, it can also be falsely positive in other autoimmune disease.

Open Original Shared Link

pricklypear1971 Community Regular

From American Celiac.org......

One negative aspect of the TTG antibody is that it can be falsely positive in a patient who has another autoimmune condition. TTG false positivity has been described in patients with both type I diabetes and autoimmune hepatitis. Theoretically, it can also be falsely positive in

other autoimmune disease.

Open Original Shared Link

I found the same thing - on Wikipedia, whatever that's worth.

Nannu Rookie

I found the same thing - on Wikipedia, whatever that's worth.

Thanks a ton to both of you. I feel this other reason is irrelavant in our case. Lets see. Awaiting a repeat test report today. Will update how it goes?

Thanks

Nannu

Nannu Rookie

Hi again,

The repeat tests for us also have come out highly positive. So, no good news. But, my question here is

How do TTG levels increase or decrease in a person with a GFD. Has anyone had an experience of delayed healing with multiple anti TTG IGA tests before they could get final normal range results. More and more replies to this post will help us get better clarity in understanding our case. A brief about the case is below:

Diagnosed 7 months back with celiac with high positive antibodies and positive biopsy. All the symptoms have been taken care since on GFD like growth, vitamin D deficiency and iron deficiency anemia. Thyroid and blood sugar were normal at the time of diagnosis only. Stomach is doing pretty well and even able to take enough dairy so as to meet daily calcium needs for a 5 1/2 year old. But, anti TTG test after 7 months came almost the same as 7 months back. This is contradictory and hence we are confused. We are trying to take utmost care and are more strict now. If you all are able to share your TTG levels at specific intervals, it would really help.

Thanks again

Nannu

Roda Rising Star

Have you replaced any worn non stick pans, wooden spoons, cutting boards, pasta strainer, toaster, waffle iron, baking ingredients/spices & herbs etc. that may have cross contamination? These things can slow down progress if you are using them, since they can't be cleaned of all trace gluten. Also is your makeup, lipstick, lib balm, lotion and other toiletries gluten free?

My initial tTG level was around 78 with > 10 positive. Six months later it was down to 4 ref. range > 19 positive. Different labs but negative result regardless. The last one I had done was last year and it was I think it was around 4 also(same ref. range as 6 mon. test).

Nannu Rookie

Hi Roda,

Thanks for the inputs. I feel i had taken care of all the things that you have mentioned. Regarding cosmetics, its my 5 1/2 yr old who is a celiac so that option is for now best avoided. We'll need to look into that aspect also as she grows. My levels were at 297 and now at 291 after 7 months. What do you think would be a good time to test again?

Expecting more replies to my post. Thanks in advance.

Nannu


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.