Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It True Or Not?


scaredparent

Recommended Posts

scaredparent Apprentice

I took my almost 8 year old to the dr today to be tested for celiac disease. A dr from Kansas City ordered all the tests Iga, Ttg, Anti-edo??, T free, and a thyrod test in the first of July but she couldn't have the test because she had been gluten-free for a week. My daughter had her tonsil out and could only have popscles and ice cream. I saw the dr 1 week post op and she wanted her on glutten for another month for sure. It has been 6 weeks so I went to our ped office and she ordered the tests for the other dr and they said the anti-edo?? test doesn't even exists. That the test is the same as the Iga and Ttg. I don't know if there is a difference or not. The lab would not run the test. Please let me know if there is diffence so I can call the dr and have them talk to the lab.

She weighs about 82 lbs and she lost 7 lbs in one week and being gluten-free. Her stomache went back normal and started pooping normal. Then I but her back on glutten and started complaining about her stomach hurting and she couldn't poop and her distended stomach cameback. I am almost positive that she has celiac disease but I want to make sure that all the test were done.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular
I took my almost 8 year old to the dr today to be tested for celiac disease.  A dr from Kansas City ordered all the tests Iga, Ttg, Anti-edo??, T free, and a thyrod test in the first of July but she couldn't have the test because she had been gluten-free for a week.  My daughter had her tonsil out and could only have popscles and ice cream.  I saw the dr 1 week post op and she wanted her on glutten for another month for sure.  It has been 6 weeks so I went to our ped office and she ordered the tests for the other dr and they said the anti-edo?? test doesn't even exists.  That the test is the same as the Iga and Ttg.  I don't know if there is a difference or not.  The lab would not run the test.  Please let me know if there is diffence so I can call the dr and have them talk to the lab. 

She weighs about 82 lbs and she lost 7 lbs in one week and being gluten-free.  Her stomache went back normal and started pooping normal.  Then I but her back on glutten and started complaining about her stomach hurting and she couldn't poop and  her distended stomach cameback.  I am almost positive that she has celiac disease but I want to make sure that all the test were done.

<{POST_SNAPBACK}>

Of course there's such a thing as the anti-endomyosial antibody test (EMA), but if it was misspelled, they may have been confused. The anti-gliandin IgA and IgG tests are separate, as is the total IgA test and the tissure trans-glutimerase (tTg) test. There is also an anti-reticulin IgA and IgG, but it is not used nearly as often these days.

While it's important that you pay attention to your daughters reaction from the diet, if you feel the need for a physician's diagnosis, please continue to follow up with the doctor to get the right tests ordered. I'm sorry the lab wasn't being more cooperative, though. If you don't need any more evidence than the changes in your daughter's symptoms with the dietary changes, then stick with the gluten-free diet!

VydorScope Proficient

You at a cross roads here. If you push now and get all the tests you can then imdetiatly go gluten-free once the tests are done. If you wait and go gluten-free first then at some point she will have to spend at least 3 months back on gluten to get the "offical" test results.

If you think at any time you might want the offical test results, then NOW is the time to get it. You will not want to return to this mess once your clear of it!

So I highly suggest you get the tests done and then your daughter can be free and clear of Gluten for ever with no reason to ever go back. :D

Thats just my non-doctor opinion....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748

    Jana McPherson-Hauer
    Newest Member
    Jana McPherson-Hauer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.