Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Figuring Out Best Supplement Plan


October3

Recommended Posts

October3 Explorer

My 7-yr old falls into the "potential celiac" category. Positive tTG, negative scope, no symptoms with gluten eliminationand then re-introduction but chronic iron deficiency anemia with no other cause identified.

We've been experimenting with supplements trying to get him feeling better and his iron levels built up. About 3 weeks ago we switched him to Floradix (previous to that he was just taking Flintstones multi + iron for lack of something better that he could tolerate). His blood work was just done and his anemia is worse now than it has been all year. :( Very frustrating because I thought it was definitely going to be better - he has been acting much better in recent weeks. Now we're hypothesizing that it is the B vitamins in the Floradix that has his energy level up. I realized when looking into it that the dose recommended for children of the Floradix (which is what we've been giving him) is only 10mg of elemental iron per day. The multi that our GI prescribed (which is so very large that there is no hope of getting him to swallow it, and once cut up it tastes horrible and doesn't slide down your throat well) had 70mg / day of iron. The Flintstones, which had been keeping him just barely in the normal range for hemoglobin but not effective at building up iron stores, has 15 mg/ day. So I think we need to have more than the 10mg from the Floradix - I thought about just giving him a larger dose of Floradix but I worry about going overboard on the B vits (I think it is 6.75mcg of B12 in the dose he's getting now - the vit prescribed by GI had 10mcg of B12). Liquid iron tastes terrible, even when mixed with juice.

Any ideas of how to concoct the perfect supplement? Any parents BTDT and have the perfect recipe?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



algarve Newbie

My 7-yr old falls into the "potential celiac" category. Positive tTG, negative scope, no symptoms with gluten eliminationand then re-introduction but chronic iron deficiency anemia with no other cause identified.

We've been experimenting with supplements trying to get him feeling better and his iron levels built up. About 3 weeks ago we switched him to Floradix (previous to that he was just taking Flintstones multi + iron for lack of something better that he could tolerate). His blood work was just done and his anemia is worse now than it has been all year. :( Very frustrating because I thought it was definitely going to be better - he has been acting much better in recent weeks. Now we're hypothesizing that it is the B vitamins in the Floradix that has his energy level up. I realized when looking into it that the dose recommended for children of the Floradix (which is what we've been giving him) is only 10mg of elemental iron per day. The multi that our GI prescribed (which is so very large that there is no hope of getting him to swallow it, and once cut up it tastes horrible and doesn't slide down your throat well) had 70mg / day of iron. The Flintstones, which had been keeping him just barely in the normal range for hemoglobin but not effective at building up iron stores, has 15 mg/ day. So I think we need to have more than the 10mg from the Floradix - I thought about just giving him a larger dose of Floradix but I worry about going overboard on the B vits (I think it is 6.75mcg of B12 in the dose he's getting now - the vit prescribed by GI had 10mcg of B12). Liquid iron tastes terrible, even when mixed with juice.

Any ideas of how to concoct the perfect supplement? Any parents BTDT and have the perfect recipe?

A vitamin C supplement with meals might be a better way to increase iron absorption without any side effects.

"Vitamin C promotes iron absorption in the small intestine.15 Vitamin C enhances absorption of soluble nonheme iron, either by reducing it or preventing its chelation by phytates or other food ligands. Vitamin C increases iron absorption 1.5- to 10-fold, depending on iron status, the test meal, and ascorbate dose. Iron absorption can be doubled by 25- to 50-mg ascorbate in the meal, and ascorbate can double iron absorption in iron-deficient patients"

Open Original Shared Link

As mentioned in the article, phytates are a real problem for iron absorption, so you should avoid unfermented soy foods and other grains which are high in phytic acid. But according to the research vitamin C will help reduce the chelation of iron by phytates.

For children, sodium ascorbate powder can be easy to take in some water. Otherwise Ascorbic Acid in a capsule or tablet. I avoid chewable vitamin C or acidic powder because it may not be good for the teeth because of the acidity. If you can't get Sodium Ascorbate, you can make it simply by combining pure Ascorbic Acid powder with about an equal amount of Baking Soda (Sodium bicarbonate). Adjust the amount of baking soda according to the acidity level you want.

October3 Explorer

Good point. We do give the Floradix mixed in orange juice and it already has Vitamin C in it as well, but perhaps increasing the vitamin C is part of the key. Thanks.

maximoo Enthusiast

there are some slow release iron pills on the market. That might help . Red meat has iron. If he eats red meat offer it to him more often. Also flintstones vitamins contain gluten. Lil Critters are gluten-free as well as disney & some others. I had to take DD off Flintstones

October3 Explorer

there are some slow release iron pills on the market. That might help . Red meat has iron. If he eats red meat offer it to him more often. Also flintstones vitamins contain gluten. Lil Critters are gluten-free as well as disney & some others. I had to take DD off Flintstones

Thanks for the tip about the Flintstones. If we go gluten free it's good to know which brands are okay.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.