Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie

Hungry Hope

By Hungry Hope
in Coping with Celiac Disease

Recommended Posts

Hungry Hope Newbie
Hungry Hope
Posted

I'll be turning 40 soon and I've always had tummy issues as long as I can remember. After a lifetime of mysterious medical symptoms (joint pain that's not arthritis, unexplained back and neck pain, terrible GI problems, foggy mind, forgetfulness, terrible fatigue....) I finally found information online about Celiac disease. I went straight to a specialist who took me off of gluten and dairy. I tested negative for Celiac but I believe it to be a false result because my symptoms match so exact to what others suffer with, plus many members of my family have the same problems. I believe my grandmother died from complications related to it. (early 1990s))

Since being gluten/dairy free I'm about 80% better. I'm still getting the hang of it. I'm glad I found this message board!!! Reading the posts here have been sooo helpful! <3

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kwylee Apprentice
kwylee
Posted

I am extremely intolerant to gluten and still tested negative for Celiac disease. If removing gluten is making you better, please stick to it. I've been strictly gluten/dairy/soy free for 16 months and it's bettered my life in so many ways.

Tira Newbie
Tira
Posted

Nice to meet ya Hope! I agree, I am new to this site too and I love it. :)

Hungry Hope Newbie
Hungry Hope
Posted
  • Author

Thanks Kwylee and Tira :-) I wish I'd known about a gluten free diet years ago. Being so sick all of those years affected my life in major ways.

Di2011 Enthusiast
Di2011
Posted

Thanks Kwylee and Tira :-) I wish I'd known about a gluten free diet years ago. Being so sick all of those years affected my life in major ways.

Ditto..

and I didn't want testing just wellness

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

      How bad can this get ?? Does it go away?? How long ? Thank you
    2. Clear2me
      - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts

      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat. I am going to keep checking. Thank...
    3. RMJ
      - RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

      I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    4. Scott Adams
      - Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
      13

      Top Brands of Gluten-Free Canned Chili

      While it seems unlikely to contain intentional gluten ingredients--and based on the ingredients you provided, this canned Wendy's chili appears to be gluten-free, but with a very important caveat: it cannot be considered certified or guaranteed gluten-free due to the potential for cross-contamination and the ambiguous nature of "natural flavors."
    5. Scott Adams
      - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Going for upper endoscopy today

      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,273
    • Most Online (within 30 mins)
      7,748
    Deborah Tracy
    Newest Member
    Deborah Tracy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Brain fog

      By Colleen H · Posted

      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
    • RMJ
      Going for upper endoscopy today

      By RMJ · Posted

      I’m glad you have a clear answer.  Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
    • Scott Adams
      Going for upper endoscopy today

      By Scott Adams · Posted

      Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.