Small Bowel

[kate12345]

Has anyone ever had transient small bowel intussusception show up on an ultrasound? Was it determined to be from celiac? Did it resolve with diet change? Thanks, Jennifer

[beebs]

I get transient i/s from gluten ingestion. I have had it 5 times since 2009 at first I didn't connect it to gluten at all. But then I went gluten free for other symptoms and 6 weeks into the diet I went to a restaurant and broke the diet, within 2 hours I was projectile vomiting and then the agonising pain started - My mum took me down to hospital but because I was pregnant they took me to labour ward thinking I was in pre term labour. By the time it was over about 3 hours from onset it was too late for an ultrasound. My GI is certain thats what it is (classic symptoms), it is the same each time - but on different scales depending I guess on how much gluten I have ingested.

The time before last I really thought that was it, I was going to die -my mum thought the same as well. It was very scary.

With regards to the ultrasound - if its transient it would only show up when you are actually having an attack if you know what I mean. So you would have to be having an ultrasound while violently ill.

There are lots of studies that have found that 20% of i/s patients suffer undiagnosed Celiac. There is deffo a connection.

[kate12345]

So what did they do for it? Is it a weak spot from damage from celiac? Since it is transient, do they fix it or does it get better on diet? Thanks. Jennifer

[beebs]

Because mine is transient (at this point) it has so far resolved on its own - who knows how long that will continue to happen? That in itself is extremely rare - usually you end up in emergency surgery having parts of you bowel removed- that is the far more common scenario. However Transient I/S is the one that is associated with celiac. Remaining gluten free means that I don't get it anymore, but I have had it once since that really bad episode - it was nowhere near as bad, I am pretty sure I was cross contaminated or something (ate at a friends house who said it was gluten free, but she doesn't really understand it blah blah)

So - basically I live every day in fear:(

It is often associated with complete villious atrophy. Have you had a biopsy?

I am basically hanging out for the vaccine to be produced so I don't have to worry about dying every time it happens. It is honestly the most agonising thing I have ever been through very similar to labour. And when it's bad, I can't even get up to get the phone to call an ambulance, I can't even talk...I have never been on my own thank god - but I always worry about it!

[kate12345]

It is my daughter, just turned 5, who has it. She is scheduled for biopsy next week. She is only positive for DGP IgG out of all the tests. I think it was that that triggered them to test for celiac. We are in TX. Thanks

[beebs]

The tests are notorious for giving false negatives to children anyway. So even if it showed nothing I would still hope they would be giving her a biopsy. Good luck - I hope that you get some answers!

[GFinDC]

And negative biopsy or not, she should still try the gluten-free diet. The tests are not 100% reliable.

[beebs]

Yeah - I reckon after testing is done, even if its negative then try the gluten-free diet - I am not one who usually thinks everyone should do it willy nilly, but there is a connection between transient i/s and celiac. And the testing can be false negative - especially in kids.