Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know If Your Kid Has Lactose Or Casein Intolerance?


The Horticulturalist

Recommended Posts

The Horticulturalist Apprentice

My son (7) was diagnosed with celiac (+ve bloods and biopsy) about a month ago. prior to that his symptoms really have been mild and infrequent, occasional diarrhea every couple of months and mild abdominal pain with the same time frame. I had him tested because I suspect I have celiac and have been unwell over the last year.

So, yesterday for the first time since going gluten free he had diarrhea, he was not unwell and it was only one trip to the bathroom. This morning he told me that his tummy hurt right after he had a drink of milk.

So I'm now questioning whether he has an issue with lactose, casein or both. He has cheese, yoghurt and milk every day and this is the first time I've wondered if there was an issue with dairy.

Anyone had a similar experience? how would I know if it was lactose or casein or both? I don't want to make him sicker,but I also don't want to exclude dairy unnecessarily. Not sure what to do. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AzizaRivers Apprentice

The easiest thing to do would be to cut out all dairy for about a week, and then give him something straight (like yogurt or a glass of milk; not cheese as some cheese are lower in lactose and wouldn't give a clear result) to have and see if that does anything. If he continues to be sick during the week before, then it might be more complicated.

Of course, that test, even if "positive" wouldn't tell you whether the problem was with lactose or casein. Not that it really matters, as the treatment is the same: no dairy (or reduced dairy depending on how he tolerates it).

Now, if the problem is a milk allergy (different than intolerances to lactose or casein) then you probably wouldn't want him to have it at all. You can take him to a doctor and ask how they recommend you test him, but the elimination test above is very simple and doesn't require any doctor's trips, and you could just go from there.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Recovery from gluten challenge

    2. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    3. - trents replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    5. - Scatterbrain posted a topic in Sports and Fitness
      2

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,281
    • Most Online (within 30 mins)
      7,748

    newlife213
    Newest Member
    newlife213
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    • cristiana
      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms.  My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea.  But you say that you haven't got any bad abdominal issues, so perhaps you could share what other symptoms you are having? Cristiana  
    • Scatterbrain
      Hello, I was newly diagnosed in January of this year (2025).  Since then I have been strict about staying gluten free and only cooking at home.  I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving.  My spouse and I take care of his mom who has advanced dementia and have been since 2021.  We did all the moving as well as get the other house on the market for the month of October.  Since earlier this month I feel like I did back in the early stages of my diagnosis.  Almost all of my symptoms have come back except for the bad abdominal issues.  I haven’t changed my diet or supplements since January and wonder if the stress has caused a set back? Any thoughts are helpful.  Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.