Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Looking To Talk With Other Celiacs

Thyraxeon

Recommended Posts

Thyraxeon Newbie
Thyraxeon
Posted

Hey, just wanting to chat with other celiacs out there about the disease, how they came to cope with it, what they eat for breakfast, lunch (at school) and dinner. What kind of hobbies they are in to and just other thing.

Anyway my names Jeremiah and i was diagnoised July 20th 2002 (one week before my B-day) and ever since then it has been a rollercoaster ride, i went on and off my diet about 5 times. Well thats it for now, hope some one out there would like to chat, talk to you all later B) .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Hello Jeremiah! I was diagnosed just less than a year after you were. I was very glad to find the answer to my health problems but it took me a long time to fully understand this new diet. For breakfast I usually eat fruit. For lunch on campus I also bring fruit with me. For lunch at home I usually make egg sandwiches and for dinners either noodles with Alfredo sauce or tomato pizza (without cheese). Homemade cubed hashbrowns are a favourite of mine, too. I am a potter so I enjoy working with clay, making glazes, and spending time in the ceramics lab. I am also really into music and go to probably too many shows and buy way too many CDs.

Kristina

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the board!

I'm not a teenager any more, but I know you'll find a great group of people of all age ranges with a lot of useful information.

As for foods (I should add that I also have to avoid dairy) - for breakfast, I usually either have a smoothie, rice cakes with peanut butter, or hot or cold cereal. On weekends, I might make pancakes/waffles or an omlette. If I've felt ambitious during the week, I might have even made muffins to have for breakfast.

For lunch, I always bring lunch with me to work. You probably don't have the luxury of a microwave at school, but if I'm not using the microwave, I'll bring leftovers that can be eaten cold like chili, salads (bean or chicken or shrimp), a tuna salad with some corn tortillas I can fold it into, raw veggies with homemade hummus, fruit, or nuts, or things like that. You can also use a thermos to bring hot soup.

For dinner, I make a lot of "one-pot" meals, because I HATE cleaning, even though I love cooking. My husband eats gluten-free with me (and if we have friends over, everything I make is also gluten-free), so it's just one thing I make. So it's often stir-fries (particularly chili based, teriyaki, or ginger based sauces) over rice, soups, stews, baked chicken w/ vegetables, grilled meat and veggies, chili, etc.

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board :D

You are welcome to email me or IM me anytime. My Yahoo is KaitiUSA.

I'm 18 and was diagnosed over a year and a half ago.

I usually bring my food with me pretty much everywhere I go and it has worked for me very well. Some people understand and some don't but that's ok because I am alot healthier then I was before.

Thyraxeon Newbie
Thyraxeon
Posted
  • Author

Thats alot of neat ideas for meals, right now i'm going to be sitting down to eat hotdogs (W) rice, of course no bun, lol. So anyway did anyone of you guys used to get dizzy spells with blurred vision as a symptom? cause i did, some of them got so bad that my vission almost went all black and i had to hold on to somthing to not fall over, freaked me out cause at the time i though i had a brain tumor. (I'm a hypocondriac) cause with that, i also had "SEVERE" i mean "SEVERE" adominal pains these got to be so bad then i fell to the floor and cried, of course at the time i was 14 and this is before i diagnosed, i weighed 68lbs.

And to add more to the problem i belived in my heart and mind that i was dying from the following: Colon Cancer, Stomach cancer, Kidey Failure, brain tumor, Radiation psning (dont ask), Heart disease, Thyroid cancer, and i think thats about it, but the awful thing about it was that i never told any of my troubles, not my mom or sis, no one, i just had all this lying on my own shoulders. AH! can't talk anymore Moms yelling to come eat, TTYL, and thanks for awsering my post.

KaitiUSA Enthusiast
KaitiUSA
Posted

I had dizziness and blurred vision. Mono is what triggered my celiac to originally activate and that was one of my first symptoms. I had black outs alot and I also had to hold onto something because otherwise I would have fell down. Not sure if it was due to mono or celiac. I didn't have pain though...I had nausea rather than pain.

It took them a long time to diagnose me and I also thought I was dying from cancer or something and was actually relieved to find out it was celiac.

I have found some great substitutes for just about every food that I used to eat with gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    2. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    3. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    4. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    5. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,692
    • Most Online (within 30 mins)
      7,748
    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.