Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Body Aches And Pains


magso

Recommended Posts

magso Newbie

Hello, I am new to this forum and would appreciate any replies to my question please. For some time now i have various symptoms of Coeliac one of them being very bad body aches and pains. I have been to my GP numerous times and asked to be tested for Coeliac, I have had blood test done and she has just said no it


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Hello, I am new to this forum and would appreciate any replies to my question please. For some time now i have various symptoms of Coeliac one of them being very bad body aches and pains. I have been to my GP numerous times and asked to be tested for Coeliac, I have had blood test done and she has just said no it´s not that. I have seen a consultant re polyps in my gall bladder as I thought all the symptoms i am getting was related to that. He said no, the symptons are not related to the gall bladder problem and he wanted food intollerance tests done, the result came back and I have sensitivity to Rye, I also have an allergy to all types of grass and certain trees. As I have this intollerance and the allergies I really am wondering if it could be coeliac that is causing all of my problems. I really feel ill at times and the body aches are awful. I have tried cutting out certain foods from my diet, I do not eat any bread or biscuits or cakes and find that if I cut these out of my diet the aches do not seem so bad. Recently I have had chocolate and cake and the aches and pains are horrendous, along with other symptoms. I have to go back to see my consultant in January but thought I would see if I could get any advice from this forum as this really is starting to worry me now. Thank you in advance.

Welcome, you have come to the right place. Not everyone tests for celiac, however the docs often don't find it but it still exists, or people can have severe gluten sensitivity. There is a recent book out called Wheat Belly that indicates that many without celiac are still helped considerably by going off the wheat family. Aches and pains are often caused by undigested proteins that leak into the gut due to damaged villi, caused by the body attacking the intestines when one ingests gliadin from the wheat family which we shorten as "gluten".

More useful tests are those that test the stool by Entero Labs. Not all docs accept their findings, however many here on this forum swear by them. Blood tests are often far less accurate, and more invasive tests like endoscopies are just that, invasive and often inaccurate.

To figure out where you are at with this all more accurately, (i.e., if you have an auto immune condition) you need to go off all trace gluten. There are lists of unacceptable additives in the about section of this forum. You also need to either replace or stop using things like your old toaster, cutting boards, wooden anything. And take your iron pots and pans and put them in the self cleaning cycle of your oven for an hour. The same with the oven itself--it needs to go through this cycle to get out the old baked in gluten. If your oven does not have this feature, consider buying yourself a new toaster oven to replace it for now. Or just don't bake anything. You also have to look at your cosmetics and either stop using them or replace them with gluten free ones. Even lip balm is suspect. Petroleum jelly is a good replacement. Then there are the detergents, soaps, cleaners, shampoo, and laundry detergent. Be certain to thoroughly clean your kitchen. I even replaced the paper drawer liners.

I found by doing all this plus of course staying off eating gluten, my old aches and pains went away! I also became a lot healthier. I stopped getting colds and flu.

However I also soon discovered I had to be careful not to get cross contamination from gluten or I would get an often strong reaction, like diarrhea, intestinal upset, more aches and pains, confusion etc. This is part of the auto immune reaction. This would and does go away after one to three days but at first for me it often took far longer. If it happened often it would weaken me and set me up for possible colds and flu again. It was worth the trouble however to for the most part be far more healthy than I had been.

Meanwhile taking things like probiotics really helps repopulate the gut with healthier bacteria which in turn helps heal the intestinal flora. In my experience dandelion and marshmallow root go a long ways too towards healing the liver/gall bladder build up and intestinal and urinary tract toxicity and inflammation--which in turns helps out with lessening residual aches and pains. Nettle tea can also be of help to reduce the inflammation.

Good luck! There is much more to learn here. Be fearless in your questions and participation. We are all here to help each other. Also use the google aspect to help find out answers since it just may be someone else has asked the same questions before--which others here have helped them with. There are also good articles to peruse too as well as info on various gluten-free products.

magso Newbie

Welcome, you have come to the right place. Not everyone tests for celiac, however the docs often don't find it but it still exists, or people can have severe gluten sensitivity. There is a recent book out called Wheat Belly that indicates that many without celiac are still helped considerably by going off the wheat family. Aches and pains are often caused by undigested proteins that leak into the gut due to damaged villi, caused by the body attacking the intestines when one ingests gliadin from the wheat family which we shorten as "gluten".

More useful tests are those that test the stool by Entero Labs. Not all docs accept their findings, however many here on this forum swear by them. Blood tests are often far less accurate, and more invasive tests like endoscopies are just that, invasive and often inaccurate.

To figure out where you are at with this all more accurately, (i.e., if you have an auto immune condition) you need to go off all trace gluten. There are lists of unacceptable additives in the about section of this forum. You also need to either replace or stop using things like your old toaster, cutting boards, wooden anything. And take your iron pots and pans and put them in the self cleaning cycle of your oven for an hour. The same with the oven itself--it needs to go through this cycle to get out the old baked in gluten. If your oven does not have this feature, consider buying yourself a new toaster oven to replace it for now. Or just don't bake anything. You also have to look at your cosmetics and either stop using them or replace them with gluten free ones. Even lip balm is suspect. Petroleum jelly is a good replacement. Then there are the detergents, soaps, cleaners, shampoo, and laundry detergent. Be certain to thoroughly clean your kitchen. I even replaced the paper drawer liners.

I found by doing all this plus of course staying off eating gluten, my old aches and pains went away! I also became a lot healthier. I stopped getting colds and flu.

However I also soon discovered I had to be careful not to get cross contamination from gluten or I would get an often strong reaction, like diarrhea, intestinal upset, more aches and pains, confusion etc. This is part of the auto immune reaction. This would and does go away after one to three days but at first for me it often took far longer. If it happened often it would weaken me and set me up for possible colds and flu again. It was worth the trouble however to for the most part be far more healthy than I had been.

Meanwhile taking things like probiotics really helps repopulate the gut with healthier bacteria which in turn helps heal the intestinal flora. In my experience dandelion and marshmallow root go a long ways too towards healing the liver/gall bladder build up and intestinal and urinary tract toxicity and inflammation--which in turns helps out with lessening residual aches and pains. Nettle tea can also be of help to reduce the inflammation.

Good luck! There is much more to learn here. Be fearless in your questions and participation. We are all here to help each other. Also use the google aspect to help find out answers since it just may be someone else has asked the same questions before--which others here have helped them with. There are also good articles to peruse too as well as info on various gluten-free products.

Thank you so much for your reply. I did not reaise gluten was in so many products. I have only really cut out bread, cakes and biscuits as these were the foods I thought I should not be eating. My symptoms are numerous. Today for example I feel really ill, I have headches, bone and joint pain all over my body, everywhere from head to toe seems to ache. It

YoloGx Rookie

Thank you so much for your reply. I did not reaise gluten was in so many products. I have only really cut out bread, cakes and biscuits as these were the foods I thought I should not be eating. My symptoms are numerous. Today for example I feel really ill, I have headches, bone and joint pain all over my body, everywhere from head to toe seems to ache. It

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    4. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.