Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results Very Confused


streethawk

Recommended Posts

streethawk Newbie

I have had my blood work back from my doctors and he has ruled out celiac can someone look at my test and tell me what it all means.

Full Haematinic levels

Serum vitamin B12 664 ng/L (246 - 911)

Serum folate 3.9 ug/L (5.4 - 20.0)

Serum ferritin 167.4 ug/L (20 - 300)

Full Blood count

Haemogolbin estimation 14.9 g/dL (13.3 - 17.3)

Total White cell count 7.7 10*9/L (3.8 - 11.0)

Red blood count 5.21 10*12/L (4.50 - 6.00)

Haematocrit 0.46 (0.40 - 0.50)

Coeliac diaease screen

TTG IgA 3.7 (0 - 15)

"Please note this is an IgA autiantibody test - False negatives may occur in those with IgA deficiemcy. Please note that we are now testing using a modified ELISA technique that is of greater specificity"

Immungolobulins

IgA 11.43g/L (5.5 -16.5)

IgA 2.99 g/L (0.8 - 4.0)

IgM 0.91 (0.40 - 2.0)

He has given me folic supplements of 5mgs a day to be retested for folic after a month. I was eating a heavy gluten diet for six weeks before taking bloods. Any ideas??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

I have had my blood work back from my doctors and he has ruled out celiac can someone look at my test and tell me what it all means.

Full Haematinic levels

Serum vitamin B12 664 ng/L (246 - 911)

Serum folate 3.9 ug/L (5.4 - 20.0)

Serum ferritin 167.4 ug/L (20 - 300)

Full Blood count

Haemogolbin estimation 14.9 g/dL (13.3 - 17.3)

Total White cell count 7.7 10*9/L (3.8 - 11.0)

Red blood count 5.21 10*12/L (4.50 - 6.00)

Haematocrit 0.46 (0.40 - 0.50)

Coeliac diaease screen

TTG IgA 3.7 (0 - 15)

"Please note this is an IgA autiantibody test - False negatives may occur in those with IgA deficiemcy. Please note that we are now testing using a modified ELISA technique that is of greater specificity"

Immungolobulins

IgA 11.43g/L (5.5 -16.5)

IgA 2.99 g/L (0.8 - 4.0)

IgM 0.91 (0.40 - 2.0)

He has given me folic supplements of 5mgs a day to be retested for folic after a month. I was eating a heavy gluten diet for six weeks before taking bloods. Any ideas??

are u a man???? are u in the States?? just curious cause your Ferritin looks too high... it MAY be ok if you're a man, but for a woman- that's too high... unless you're overseas and i dont know those measurements... ???

*ALSO- your TTG may be "negative".. but that's only 1 of 3 Antibody tests used to screen for Celiac... it is not enough to test ONE antibody and then RULE IT OUT 100%.... you have to get all 3 antibody tests to get a good idea on this tricky disease.

the other 2 are:

EMA (Endomysial Antibody)

Antigliadin Antibody (OR the newer better Deamidated Antigliadin Antibody.

i would request these 2 right away to take advantage of the gluten challenge you were on....

and in the end if you still dont get a definitive answer- consider just listening to your body... it is more than possible to suffer and even develop other diseases without having Celiac.

nora-n Rookie

I am overseas, and the ferritin is the same measure, and the ranges look about the same, depending on the lab.

On the hemochromatosis forums, they all have some form of gluten intolerance.....

normal ferritin is closer to 20-30-50 or so.

What is the total iron, and the transferrin saturation?

And, the other celiac tests

Vitamin D

There is at least one alternative website that says that they have successfully treated their hemochromatosis with lots of antioxidants, and that also the liver numbers have normalized, and blood tests too. I do not know if it would work for all.

streethawk Newbie

Yes I am a man from the UK its very hard to get any sort of testing here on the NHS. As my immunglobins were all within the normal range and as well as my B12, ferritin and all other blood counts I guess he has used that as 100% negative. Im not sure there is any other tests for celiac in UK blood wise? dose any body know?

My TTg seems very low is that a good sign? Im not sure I can carry on with the gluten and dairy I am slowly lossing my mind lost in depression I fear I cant even get out of it now. It would be nice to have an answer for why I have suffered my whole life but might have to settle on not knowing? Im not sure why my folate is so low he says I have no anemia and should come up to normal range with the supps.

streethawk Newbie

Are you talking about the mean corpus haemgqolbin, plate count I have quite a few results not sure which ones you mean?

Skylark Collaborator

There are a lot of people who get ill from gluten and never have positive celiac tests. Your TTG is negative, meaning you are probably not celiac. Problem is the test is only positive in 80% of the folks with celiac disease. It misses one in five. It would be good if you can get the more sensitive deamidated gliadin antibody test while you are on gluten challenge.

You clearly need some folate, and consider trying methylfolate (Metafolin). Some people don't metabolize dietary folate correctly and methylfolate corrects the issue.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.