Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Dh And Testing For It.


BellaBella

Recommended Posts

BellaBella Rookie

Per some of my previous posts/threads I am having trouble getting a formal Celiac diagnosis. A quick rundown: negative blood panel, negative pathology report from biopsy but doctor did see visual flattening of the mucosa during endoscopy....and obviously I have many many symptoms.

But one of my other severely irritating symptoms is intense skin itching. I have 5 or 6 places on my body that itch all day long and get way worse in the evening. In some of those places I have little patches of slightly darkened skin. The patches sorta look like dry skin but they are the itchiest spots on my body. They look NOTHING like any of the DH images I have seen online - there is no blistering, and no redness (until I scratch), and I'm wondering if it could still be DH.

Is it worth getting a biopsy? I have a call into my derm to see if DH is something she is familiar with and if she would do a biopsy for me but I won't hear back from anyone in her office until tomorrow.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Per some of my previous posts/threads I am having trouble getting a formal Celiac diagnosis. A quick rundown: negative blood panel, negative pathology report from biopsy but doctor did see visual flattening of the mucosa during endoscopy....and obviously I have many many symptoms.

But one of my other severely irritating symptoms is intense skin itching. I have 5 or 6 places on my body that itch all day long and get way worse in the evening. In some of those places I have little patches of slightly darkened skin. The patches sorta look like dry skin but they are the itchiest spots on my body. They look NOTHING like any of the DH images I have seen online - there is no blistering, and no redness (until I scratch), and I'm wondering if it could still be DH.

Is it worth getting a biopsy? I have a call into my derm to see if DH is something she is familiar with and if she would do a biopsy for me but I won't hear back from anyone in her office until tomorrow.

There are other posters here with itchy spits, though I don't know about brown spots. I think there's a link with detox (gluten) and kidney or liver issues (detox). I itched like that for a few weeks. Was quite scary given the DH.

Do a search for itching and see what you turn up on the forum.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    3. - knitty kitty replied to pilber309's topic in Related Issues & Disorders
      11

      Burning Sensation in the small intestine

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,884
    • Most Online (within 30 mins)
      7,748

    Dexterlaundyatgmail.com
    Newest Member
    Dexterlaundyatgmail.com
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      You should be fine.  You may start feeling better within a few days.  Someone who is very low in thiamine may notice improvement within hours.   Did you get the NeuroMag  or another magnesium supplement?
    • xxnonamexx
      Yes Bobs redmill cgf oatmeal I started when I became gluten-free. So taking all 3 with breakfast should work? Will I notice any reactions getting used to these or should I be fine. Thanks
    • knitty kitty
      Hello, @pilber309, welcome to the forum! Are you currently consuming dairy?   You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it?   Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. 
    • knitty kitty
      You may want to skip the oatmeal.  I believe you're trialing a gluten free diet while waiting for an appointment with your doctor in the new year and doing a gluten challenge then.  Some people with Celiac disease react to the protein in oats called avenin the same as to gluten.  Cross contamination between oats and gluten containing grains is possible.  Are you consuming certified gluten free oats?   I would hate for you to have a reaction to the oats and blame it on the vitamins. Yes, it will be fine to take them all together.  I take mine all together, B Complex, Benfotiamine and TTFD Thiamine with breakfast. If you're really anxious about it, just take the B Complex and Benfotiamine at breakfast and the Thiamax at lunch.  You won't have to take a second B Complex with the Thiamax.  
    • xxnonamexx
      So I purchased the Life Extension Benfotiamine with Thiamine along with the Thiamax. I will take along with my Super B Complexes. I stopped taking the multi vitamins. Should I take all 3 vitamins/supplements together with my morning oatmeal breakfast? Do you think I will experience any bad symptoms when taking them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.