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Looking For A Doctor Who Knows How To Deal With And Treat Celiac

Meggielynn13

By Meggielynn13
in Doctors

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Meggielynn13 Rookie
Meggielynn13
Posted

I'm going to get tested by my PCP in January but I would like to go to a specialist who specializes in Celiac and Gluten Sensitivity. I'm looking for a doctor in the upstate New York area between Albany and Saratoga if possible. I've been to GI's who supposedly specialized in Celiac and I ended up knowing more about Celiac then they did. What a waste of hundreds of dollars. If you know of any doctors I would really appreciate contact information.

Thank you!

  • 2 weeks later...
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IrishHeart Veteran
IrishHeart
Posted

I'm going to get tested by my PCP in January but I would like to go to a specialist who specializes in Celiac and Gluten Sensitivity. I'm looking for a doctor in the upstate New York area between Albany and Saratoga if possible. I've been to GI's who supposedly specialized in Celiac and I ended up knowing more about Celiac then they did. What a waste of hundreds of dollars. If you know of any doctors I would really appreciate contact information.

Thank you!

Good thing I happen to be reading this section! Your topic does not say WHERE you are looking, hon-- that's probably why no one answered you!

I DO have an AWESOME doctor now that I can recommend to you!

His name is Dr. William Gusten and he can be reached at Saratoga-Schenectady Gastroenterology--office in Burnt Hills, too.

Don't waste time--call now and get an appt.

Feel free to PM me if you want to know more.

Meggielynn13 Rookie
Meggielynn13
Posted
  • Author

Thanks you so much IH for your response. I actually went there and saw another doctor that was not helpful at all. Gave me the BS diagnosis of IBS. Hopefully I can get a referal to go there once I get diagnosed. I had my blood drawn for the celiac panel. Crossing my fingers that I'm not in the 20-30 percent false negative group :)

IrishHeart Veteran
IrishHeart
Posted

Thanks you so much IH for your response. I actually went there and saw another doctor that was not helpful at all. Gave me the BS diagnosis of IBS. Hopefully I can get a referal to go there once I get diagnosed. I had my blood drawn for the celiac panel. Crossing my fingers that I'm not in the 20-30 percent false negative group :)

I'm in that club! :) A serio-negative celiac.

Dr. Gusten is different. Very good doc--open minded and compassionate. Keep me posted!

Meggielynn13 Rookie
Meggielynn13
Posted
  • Author

IH-

Good news. Positive for DGP IgA, the newest test that they do. But they referred me to Dr. Boyer, not Gusten cause I have seen Boyer before. Hopefully I can switch to Dr. Gusten because he seems like he knows more than Dr. Boyer does. :D

IrishHeart Veteran
IrishHeart
Posted

IH-

Good news. Positive for DGP IgA, the newest test that they do. But they referred me to Dr. Boyer, not Gusten cause I have seen Boyer before. Hopefully I can switch to Dr. Gusten because he seems like he knows more than Dr. Boyer does. :D

Welcome to the club!

Are you okay with this news, hon?

Are they going to biopsy as well?

I am sure Dr. Boyer will take good care of you, but I see no reason why you can't see the doctor of your choice.

Look at it this way, you can do your "I told you so dance" in front of him now. :D

Meggielynn13 Rookie
Meggielynn13
Posted
  • Author

I don't think it has hit me yet. When I go to have bread and go oh wait.. can't have that it'll hit me. I hope they do a biopsy but it probably won't be positive so I'm not getting my hopes up. I'm not sure why I can't see someone else but I'll have to talk to the GI office when they call me to make an appointment.

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IrishHeart Veteran
IrishHeart
Posted

Well, a positive blood panel is enough for any of us on here!

Let me know if I can help any further.

Living gluten-free is not as complicated as it first seems. Feeling better is worth it!!!

I have loads of info for newbies I can share and this forum is a treasure trove of helpful people!

If you have not been to Sherry Lynn's Gluten Free in Latham yet, go there and enjoy!! :)

Best wishes, hon. Feel free to PM me if you need ANYTHING!

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