Son's Biopsy Results

[jcgirl]

My son finally had his biopsy 8-15-05. The poor kid has 4 ulcers in the esophogus and 1 in the stomach from severe GERD. The doctor called today and said that the results of the biopsy were negative for celiac but that he does have inflammation. He is also waiting for some other pathology tests results. He suggested a lactose free diet for two weeks to see if that helps with the diarreha. He is also ordering more testing, the barium x-ray test thing (forget the name) and also more stool samples. (My enterolab results came back positive for gluten intolorance.) Are there specific tests for gluten intol. that I can request. I do have to say that I am Very pleased with this pediatric GI. He is very thorough and looking for every possible cause. I told him that I had my son on a gluten challenge for 2 weeks about 6 months ago, he suggested waiting until all results are in before going gluten-free. Needless to say my 12 year old is happy with that suggestion.

[Carriefaith]

The doctor called today and said that the results of the biopsy were negative for celiac but that he does have inflammation.

What did he mean by inflammation?

The only tests that I know of that test for gluten intolerance are with enterolab. I am not a doctor but I think going gluten free and lactose free is worth a try, after all the testing is done though. But he may have to be off gluten for awhile to notice improvements (like a few months).

[jcgirl]

Carrie,

I believe he was talking about swelling in the intestines. I spoke to the nutritionist yesterday and she said one diet at a time to start with. I also did not realize when I first posted that they were talking about all milk products and not just lactose. Grocery shopping will be difficult with my being gluten-free and my son being milk free. I also have 4 other kids in the house that can eat whatever they want no problem, of course they are step children so I don't have to worry there.

[Guest Lucy]

Congratulations that its not celiac. I hope the lactose free diet works. If it doesn't you can always try going gluten free on your own. Thank your lucky stars that he does not have Celiac. If you want any advice if you do try gluten free let us know. We all have plenty. Weather you want it or not.

[Carriefaith]

I find that dairy is in just as many things as gluten so you have to be careful sometimes. If he has to go 100% dairy free, make sure you watch out for dairy in chips, chocolate, candies, microwavable dinners, butter, margerine, and processed foods.

I am also dairy free in addition to gluten free, so if you need any suggestions on recipes or safe products, just let me know

[jcgirl]

Carrie,

I will take you up on your offer. Any name brand easy to cook type foods out there that a 12 year old can cook and/or mircrowave on his own. He is not big on veggies, etc. Loves the fries, lipton noodles, chix tenders. I also have to watch out for the acidy food due to his severe acid reflux and ulcers.

I did find a great substitute for ice cream. Philly Swirls are awesome