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Symptoms


Jillybeanmi

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Jillybeanmi Newbie

I have not been formally diagnosed with celiac disease, however, I spent a few months in severe pain with gas and bloating. Gurgling intestines and severe constipation. I also then alternated with diarrhea, foam and mucus. I'm not trying to be graphic, but I've not read a lot about symptoms from real people and I'm curious. My digestive specialist said i have IBS, but I put myself on a gluten free diet and increased my fiber and feel better than ever. I read that in order to get tested for celiac I would have to go back on gluten and I'm not about to do that anytime soon. This is all very new to me and nobody once suggested I get tested for it. I learned everything through my own research. I had noodles one day after being on this diet for a while and had another attack. If I steer clear, I feel so much better and bathroom habits are back to normal. Any insight??


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heidi g. Contributor

If you feel better stay on the diet. My blood test came back negative and my biopsy came back positive. And my genetic test came back positive. My symptoms were: extreme bloating, constipation, some diarrhea, lactose intolerant (which I have never been before until I got sick) extreme nausea, gas, indigestion, acid reflux, and basically every symptom of gerd.

Candicep Newbie

I havn't been formally diagnosed either but these are the symptoms I am experiencing:

Since I was pretty young i've had GERD, fatigue, depression/anxiety, lactose sensitivity, and diarrhea off and on. Just in the past couple of years (im 29 now), new symptoms have developed including: bloat/stomach swelling, shortness of breath after eating sometime, foggy brain/memory issues/ irritability, white spots on skin, numbness in hands/joint pain in fingers, bladder pain/pressure, and extreme menstrual cramps (never had issues with that til the past year. I literally passed out/went to the ER bc of the pain/pressure). The menstrual issues might be something different all together but i've read it could be a symptom.

I can't wait until I can get some form of medical insurance. Ugh.

addis001 Apprentice

First 6 months--SEVERE fatigue (had trouble waking up)

Next--Unexplained nausea, sometimes even vomitting, constipation and back aching like I had a gallstone attack (I have no gallbladder), and the feeling of not wanting to eat, along with unexplained weightloss.

Next-Pain under right rib, shooting through to back almost like a kidney stone or gallbladder attack, I've been scanned for both multiple times.. No stones, no gallbladder, no stones in bile duct

Then---Irritable, depressed, sleeping all day long, pain, no energy, nausea, diarrhea (this one hit last), Diarrhea comes after very intense pain and its a horrible smell, Horrible gas, horrible smelling poop, but when I pass gass or burp I feel better..

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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