Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Problems

JenneferJ

Recommended Posts

JenneferJ Newbie
JenneferJ
Posted

We went gluten free on January 2 to try to help my ds11 M. He didn't gain weight appropriately and his doctor did blood work that showed he likely had celiac disease. Over the month M didn't notice any difference at all. Over the same month ds7 P started having problems getting to the potty on time. Not everyday or every meal, just sometimes. And by sometimes I mean 5 or so times a week. Unignoreable but hard to pinpoint. I didn't food journal his food because he wasn't my target M was. His issues were massively affecting not only his quality of life but everyone else's lives too.

After five weeks of strictly doing gluten free, we did a gluten trial. M had no significant issues. He does say that he is more tired and feels ickier. He wants to go back to gluten free. But P's sudden diarrhea went away as quickly as it started. He doesn't mind the gluten free food, but he really really doesn't want to have potty accidents anymore. For P's sake I really need to not do gluten free.

So any ideas of what to do? One kid needs a certain diet and another need to be NOT on the same diet. EEK! I don't have any idea of what is causing P's issue with the gluten free diet. P absolutely hates beans and nuts of any kind. We thought he was allergic to peanuts for years because of his intense aversion to them. But there was no peanuts in anything that we ate.

I am going to go crazy if I have to choose one child over another one. Wah!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emily30 Newbie
Emily30
Posted

we do a combined home because my son gets constipated eating all gluten-free. So, I just have 2 different breads, different cereal, different crackers, etc... We do the gluten-free pasta though.

frieze Community Regular
frieze
Posted

hmm...it would seem to me, if eating gluten alters a persons bowel status, they shouldn't eat gluten.....if they have diarhea gluten free, there is something else in their diet that needs to be changed.

JenneferJ Newbie
JenneferJ
Posted
  • Author

Thank you for the help.

I guess I will figure something out.

GretaJane Newbie
GretaJane
Posted

What new thing are you giving M when he was gluten-free? Beans and bean flour? Try gluten-free without bean products. Maybe its something else that you were introducing on the gluten-free diet.

Cara in Boston Enthusiast
Cara in Boston
Posted

I've never heard of something removed from the diet causing issues. It is more likely something different that he is eating that just happens to be in some gluten-free products. I did notice that the amount of fiber we were eating went way down when we went gluten-free (most gluten-free "substitute" products don't have much fiber or even nutrition . . .) We corrected this by eating mostly naturally gluten-free foods and making a point to get fiber from other sources (vegetables, avocado, popcorn, quinoa, etc.) We still buy gluten-free pasta and sandwich bread, but that is about it. It is really just junk food.

I doubt it was the removal of gluten.

I did find that when I went gluten-free, my GI symptoms got WORSE (along with withdrawal symptoms: headache, fatigue, etc.) in the first 10 days, then just vanished. My MD said that was normal and another indication that I should not be eating gluten. Your body wouldn't even notice it was missing if you don't actually have a problem with it.

Did you get the whole family tested? Maybe you should start with that.

Cara

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,176
    • Most Online (within 30 mins)
      7,748
    Cassiedawn16
    Newest Member
    Cassiedawn16
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...