Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alopecia Areata


HeatherRJSoleil

Recommended Posts

HeatherRJSoleil Rookie

Hi there,

I was diagnosed gluten intolerant in November, just before Thanksgiving (nice timing!). About two months prior, in September, I noticed a couple round spots where my hair fell out. I figured it was brought on by stress, but read recently that there's a connection between gluten sensitivity and alopecia areata. Anyway, it's been six months and the hair hasn't come back. If anything the spots have gotten bigger since going gluten free.

I've been using Nioxin, but just switched to a gluten-free shampoo and conditioner just on the off chance that there's something gluten-derived in Nioxin (I've heard mixed reports). The little bumps that appeared on my bald spots are clearing up, which is something.

Has anyone had this problem, and if so, how long did it take before your hair came back?

This has happened to me once before, in 2007, and it came back within a few months. It's pretty disturbing. I look like a sumo wrestler if I put my hair in a ponytail.

Any help would be most appreciated.

Heather


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



natalieeeV Newbie

Heather,

I've been dealing with the same issue. I was diagnosed with Celiac Dz in September and started losing my hair in Dec/Jan timeframe. I'm not sure exactly why NOW I'm losing my hair since I wasn't gluten-free before October. I have an appt with my Dr on Monday and I'm going to ask him.

Like you, I thought it was due to stress, being away from my husband, family, recently moving across the country, etc... but it's not growing back. I'm Active Duty Military and I attributed the hair loss to be from maybe pulling my hair back every day (though I've been doing it for over 4 yrs...) so I cut it in December. Since then, no change... it still breaks A LOT, bald spots and thinning.

I've recently switched to gluten-free EVERYTHING.. Makeup, Shampoos, Gel, etc. Have you done that?

Let me know!

Natalie

ciamarie Rookie

I would suspect that switching to the gluten-free shampoo may make the difference. My hair was definitely thinning, and I've been gluten-free for just about 4 months now and my hair is now getting thicker for at least the last month or so. Since you mentioned that the red bumps are clearing up since using another shampoo, that's a good sign. In case you're curious, the shampoo I've been using for about the last 2 months is Suave Professional volumizing for fine hair.

HeatherRJSoleil Rookie

Thanks ya'll!

Maybe I will have to be patient (not my strong suit)?

Natalie, I'd be curious to know what your doc says -- good luck! As far as other personal care products, as far as I can tell everything is gluten free now. The only suspect item is my face cleaner -- from Trader Joe's -- which lists "oat amino acid" as an ingredient. I haven't looked into whether that could be a problem. I wear my hair in a ponytail a lot since I'm pretty athletic (running, cycling). I've started wearing one of those cloth headbands when I run, which hides most of the bald back of my head. I'd be so happy just to see stubble.

Heather

ciamarie Rookie

Oats are usually cross-contaminated with wheat during processing, so anything with oats should be considered unsafe. (Except for specifically labeled gluten-free oats.) I'd replace the face cleaner as soon as you can, though it may or may not affect your scalp.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748

    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.