Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here


songbird123

Recommended Posts

songbird123 Newbie

Hello everyone! :) Until today, I had never even heard of Celiac Disease, but ran across it on Google while doing some research on my current medical state. For about a month, I have been having bowel habits that are not normal for me...having to go 10-15 minutes after I eat (especially if I have milk), diarrhea (which sometimes "looks funny" and has a foul odor) and loose stools, abdominal cramping, feeling like I have to go but can't, and a little bit of blood. I've been worried I might have colon cancer, so I went to the doctor and they did a colonoscopy this past Friday with two biopsies. They said everything looked fine...no tumors or polyps, but I have to wait until next week to get the biopsy results. Well, after doing more research, I discovered some info on Celiac Disease and now I'm concerned that might be my problem. You see, I also have gas/bloating, unexplained weight gain, fatigue, rectal itching and I was diagnosed last year with fibromyalgia because of the pain and easy bruising. And I will admit...I love sugar. I don't sit around all day eating candy bars, but I do love chocolate and sugary things and I live off of Mt. Dew. Just was wondering if anyone here thinks that Celiac Disease might be what's wrong with me. Can it be diagnosed by a biopsy taken during a colonoscopy? Thank you! :)

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Michelle, and welcome. No, a colonoscopy cannot diagnose celiac disease. Even an upper endoscopy cannot diagnose it unless they are specifically looking for it and treat the biopsy samples with special staining.

Many of your symptoms are synonymous with those of celiac disease and it is possible you could be in the early stages. Your first step is to go to your GP and ask her to perform a celiac blood panel test on you. That consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The normal procedure if any of these IgA tests are positive is to refer you to a GI for an upper endoscopy and biopsy samples for confirmation of the positive diagnosis, although more and more doctors are feeling that the biopsy is no longer necessary if the blood testing is firmly positive. And it is your decision whether or not to have the endoscopy.

songbird123 Newbie

Well, the more I read about Celiac Disease, the more convinced I am that I have it. :( Forgot to mention earlier that I also have insomnia, and I have had asthma since I was 18 months old. My best friend is being supportive but said "What would you eat?!?" LOL I haven't told my boyfriend yet what I suspect, because I don't want him to think I'm being a hypochondriac like my family does. My mother thinks I'm just looking for something to have. No...I'm looking for a way to feel better. I do want to have the blood test done, but I don't know if I can convince the doctor to do it. :(

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      High TTG-IgG and Normal TTG-IgA

    2. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    4. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,839
    • Most Online (within 30 mins)
      7,748

    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.