Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Here


songbird123

Recommended Posts

songbird123 Newbie

Hello everyone! :) Until today, I had never even heard of Celiac Disease, but ran across it on Google while doing some research on my current medical state. For about a month, I have been having bowel habits that are not normal for me...having to go 10-15 minutes after I eat (especially if I have milk), diarrhea (which sometimes "looks funny" and has a foul odor) and loose stools, abdominal cramping, feeling like I have to go but can't, and a little bit of blood. I've been worried I might have colon cancer, so I went to the doctor and they did a colonoscopy this past Friday with two biopsies. They said everything looked fine...no tumors or polyps, but I have to wait until next week to get the biopsy results. Well, after doing more research, I discovered some info on Celiac Disease and now I'm concerned that might be my problem. You see, I also have gas/bloating, unexplained weight gain, fatigue, rectal itching and I was diagnosed last year with fibromyalgia because of the pain and easy bruising. And I will admit...I love sugar. I don't sit around all day eating candy bars, but I do love chocolate and sugary things and I live off of Mt. Dew. Just was wondering if anyone here thinks that Celiac Disease might be what's wrong with me. Can it be diagnosed by a biopsy taken during a colonoscopy? Thank you! :)

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi Michelle, and welcome. No, a colonoscopy cannot diagnose celiac disease. Even an upper endoscopy cannot diagnose it unless they are specifically looking for it and treat the biopsy samples with special staining.

Many of your symptoms are synonymous with those of celiac disease and it is possible you could be in the early stages. Your first step is to go to your GP and ask her to perform a celiac blood panel test on you. That consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The normal procedure if any of these IgA tests are positive is to refer you to a GI for an upper endoscopy and biopsy samples for confirmation of the positive diagnosis, although more and more doctors are feeling that the biopsy is no longer necessary if the blood testing is firmly positive. And it is your decision whether or not to have the endoscopy.

songbird123 Newbie

Well, the more I read about Celiac Disease, the more convinced I am that I have it. :( Forgot to mention earlier that I also have insomnia, and I have had asthma since I was 18 months old. My best friend is being supportive but said "What would you eat?!?" LOL I haven't told my boyfriend yet what I suspect, because I don't want him to think I'm being a hypochondriac like my family does. My mother thinks I'm just looking for something to have. No...I'm looking for a way to feel better. I do want to have the blood test done, but I don't know if I can convince the doctor to do it. :(

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.