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songbird123

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songbird123 Newbie
songbird123
Posted

Hello everyone! :) Until today, I had never even heard of Celiac Disease, but ran across it on Google while doing some research on my current medical state. For about a month, I have been having bowel habits that are not normal for me...having to go 10-15 minutes after I eat (especially if I have milk), diarrhea (which sometimes "looks funny" and has a foul odor) and loose stools, abdominal cramping, feeling like I have to go but can't, and a little bit of blood. I've been worried I might have colon cancer, so I went to the doctor and they did a colonoscopy this past Friday with two biopsies. They said everything looked fine...no tumors or polyps, but I have to wait until next week to get the biopsy results. Well, after doing more research, I discovered some info on Celiac Disease and now I'm concerned that might be my problem. You see, I also have gas/bloating, unexplained weight gain, fatigue, rectal itching and I was diagnosed last year with fibromyalgia because of the pain and easy bruising. And I will admit...I love sugar. I don't sit around all day eating candy bars, but I do love chocolate and sugary things and I live off of Mt. Dew. Just was wondering if anyone here thinks that Celiac Disease might be what's wrong with me. Can it be diagnosed by a biopsy taken during a colonoscopy? Thank you! :)

Michelle

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mushroom Proficient
mushroom
Posted

Hi Michelle, and welcome. No, a colonoscopy cannot diagnose celiac disease. Even an upper endoscopy cannot diagnose it unless they are specifically looking for it and treat the biopsy samples with special staining.

Many of your symptoms are synonymous with those of celiac disease and it is possible you could be in the early stages. Your first step is to go to your GP and ask her to perform a celiac blood panel test on you. That consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The normal procedure if any of these IgA tests are positive is to refer you to a GI for an upper endoscopy and biopsy samples for confirmation of the positive diagnosis, although more and more doctors are feeling that the biopsy is no longer necessary if the blood testing is firmly positive. And it is your decision whether or not to have the endoscopy.

songbird123 Newbie
songbird123
Posted
  • Author

Well, the more I read about Celiac Disease, the more convinced I am that I have it. :( Forgot to mention earlier that I also have insomnia, and I have had asthma since I was 18 months old. My best friend is being supportive but said "What would you eat?!?" LOL I haven't told my boyfriend yet what I suspect, because I don't want him to think I'm being a hypochondriac like my family does. My mother thinks I'm just looking for something to have. No...I'm looking for a way to feel better. I do want to have the blood test done, but I don't know if I can convince the doctor to do it. :(

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
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