Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cyclical Vomiting, Proctaearslgia Fugax- After Being gluten-free For 3 Years


anniebeth

Recommended Posts

anniebeth Apprentice

I have been gluten-free for 3 years. I also eat a whole foods diet that includes lots of probiotic foods, no grains, etc. I am healthier than I have ever been. The only problem is that in the past year I have had a couple months where I've had episodes of what seems like cyclical vomiting. I also have been suffering from proctalgia fugax (rectal spasms) about once a month for the past year. Both problems are considered GI disorders. I am frustrated because I feel like that for the amount of time I have been gluten-free, I shouldn't be having any problems- much less new ones. Add to that the fact my diet is extremely healthy and I've added 10-15lbs of weight on in the past year and a half (which is a good thing), I've been able to go off my OCD meds, and my teeth have been wonderful at the past few checkups- I just don't understand where or why these gastro symptoms have come on. Is it possible for celiac related symptoms to occur even after you've been gluten-free for a while? Were they just lurking under the surface?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Sometimes people just get another problem to deal with after Celiac.

My daughter did great gluten free from 17 months old (diagnosed probable Celiac) until she turned 6. Some nasty virus went around. She started vommiting blood. At the hospital they down played it and just treated her for the dehydration. The same month she turned 6 she just started vommitting up to 5-6 times a day. She had an endoscopy with biopsy done and was diagnosed with Eosinophilic Esophagitus. Now after living with both Celiac and EE for 3 years, there is a proven connection between the 2 disorders.

Skylark Collaborator

You'd think dealing with celiac should give us a pass on other health problems, but alas, it is not the case.

Is there any chance the symptoms are coming from accidental or hidden gluten?

anniebeth Apprentice

You'd think dealing with celiac should give us a pass on other health problems, but alas, it is not the case.

Is there any chance the symptoms are coming from accidental or hidden gluten?

My husband said he thought that might be the case. Just don't know where it could be coming from. And unfortunately, yes, there are plenty of disorders that are associated with celiac. I was just hoping that being gluten free would keep them from occurring.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...