Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello

PatSch

Recommended Posts

PatSch Newbie
PatSch
Posted

Hi, everyone! I am new to this site but was diagnosed in 1987 with gluten intolerance and then later with Celiac. I have a large family all of whom are either gluten intolerant or Celiac. Some follow the restrictions, some do not. As for me, I watch my foods and products like a hawk because the symptoms are so awful if disregarded.

I am glad to see that Las Vegas has a forum however, it does not look like it is very active.

As a family we are involved in health care in this community and work with a lot of gluten intolerant folks. Amazing how their lives feel "reborn" with just the elimination of gluten! I love sharing with others that there is another way to feel better and they are the ones responsible for how they feel by what they ingest! No one has to rely on someone else to make them feel better. We are all "in charge" of ourselves. Nice to know the responsibility lies within us.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sharilee Rookie
sharilee
Posted

Welcome! I was diagnosed myself a month ago and since being gluten free I am feeling better and it is wonderful.

orange Newbie
orange
Posted

Hi, everyone! I am new to this site but was diagnosed in 1987 with gluten intolerance and then later with Celiac. I have a large family all of whom are either gluten intolerant or Celiac. Some follow the restrictions, some do not. As for me, I watch my foods and products like a hawk because the symptoms are so awful if disregarded.

I am glad to see that Las Vegas has a forum however, it does not look like it is very active.

As a family we are involved in health care in this community and work with a lot of gluten intolerant folks. Amazing how their lives feel "reborn" with just the elimination of gluten! I love sharing with others that there is another way to feel better and they are the ones responsible for how they feel by what they ingest! No one has to rely on someone else to make them feel better. We are all "in charge" of ourselves. Nice to know the responsibility lies within us.

yr lines gave me hope , well i live in a country in civil war and it is not easy hard to explain but big thk u

orange Newbie
orange
Posted

Welcome! I was diagnosed myself a month ago and since being gluten free I am feeling better and it is wonderful.

its good how u feel but remember it is not smooth graph going up there will be up and downs it is a dancing sort of progress one day u move forward next day it may be different story that is where u keep faith for better . it is better to acess (pl forgive my spelling as my english is poor )yourself after every 6 month than we find the difference .

take care n God Bless u

TIBZY Newbie
TIBZY
Posted

Hey everyone.. I'm also new here..I was diagnosed with celiac disease at the age 10.. Back then it was very hard as I didn't no much.. 14 years now.. And I am fine :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to you all. There can be ups and downs and it can be frustrating at times but the folks on this board are here to help you in any way they can. Ask any questions you need to and do feel free to vent if needed. We have members from all over the world so if you live in a country or area where eating gluten free can seem a bit daunting just ask what you need to ask and hopefully someone will be able to help.

I hope you all continue to improve.

DawnMarie127 Newbie
DawnMarie127
Posted

Hello ,

I am new here too.. need a place to chat where everyone understands what I am going through.. They all seem to think this is just no big deal.. Don't eat bread your good.. But I was on weight watchers and losing weight then this now I have to change everything again.. Grrrr!!

Now I think I am having Gluten withdrawl, bad headache and I keep snapping at people..

I love to cook for my family and went to taste the pasta out of habit and just started crying.. No one gets it!

That's it for now.. Thanks for listening..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


deltron80 Rookie
deltron80
Posted

Welcome to the forums everyone!

yr lines gave me hope , well i live in a country in civil war and it is not easy hard to explain but big thk u

I always wonder what it's like for people living in food-limited places. When there is nothing to eat besides something with gluten, is it better to eat the poison or to starve??? :(

Hello ,

I am new here too.. need a place to chat where everyone understands what I am going through.. They all seem to think this is just no big deal.. Don't eat bread your good.. But I was on weight watchers and losing weight then this now I have to change everything again.. Grrrr!!

Now I think I am having Gluten withdrawl, bad headache and I keep snapping at people..

I love to cook for my family and went to taste the pasta out of habit and just started crying.. No one gets it!

That's it for now.. Thanks for listening..

It must be extremely difficult for you to adjust while also trying to cook for your family. Maybe try cooking some gluten-free dishes without even telling them it's gluten-free? Then everyone can enjoy the meal together.

ncallier Newbie
ncallier
Posted

Hi! I too am both newly diagnosed and new to this forum. I am very glad to read your reactions to eliminating gluten from your diet. I have been gluten free for less than a month. At first, I thought my gi symptoms were gone for good, but I have days when they flare up again. I am being extremely careful, but it almost feels as though I am getting accidentally glutened. Anyone have any thoughts??

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.