Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have A Doc Rec. In Sc

julie5914

By julie5914
in Doctors

Recommended Posts

julie5914 Contributor
julie5914
Posted

An internest in Travelers Rest, SC named Dr. Diehl has Celiac Disease and knows how to treat it. They have a health care practice a little different from what you are used to. www.paradocshealth.com - Here is their deal:

- They will not stop trying to find out what is wrong till you are satisfied

- Before they even see you, you need to fill out a long questionnaire that defines what's wrong and what your goals are as far as making it right, and what you've been tested for before. You can also send in your medical records. She will review all of this at no charge to decide if she can help. If she can, she will call you to set up an appt.

- The first appt. is 2 hours long, and hopefully you will get most of the detective work done in that time.

- She does not do the insurance thing, so she is not on anyone's plan. That means you must pay her up front. She will, however, check into your insurance and use codes that they will cover the highest percentage of.

This woman helped my mom - my mom struggled with what she thought was type 2 diabtes for over 20 years. When her sugars stayed high and she gained weight, her doctors assumed she wasn't eating right even though she was eating like an angel, trying desparately to feel better. They never ran more tests, just kept checking sugar. Dr. Diehl finally decided to check how much insulin was in her body. Almost none! That is not type 2, that is type 1! Her body was attacking her pancreas with each pregnancy and sickness. They mistook it for gestational diabetes and type 2 for all that time. She could have gotten really really bad. Thankfully she is on insulin now.

These doctors actually have the name Celiac disease on their Web site. I already know I have it, but I am going to them to find out if I am still battling the symptoms of it or if I have something else going on. She is not afraid to investigate autoimmune disorders. It seems like a lot of other doctors are because they are very ambiguous and they don't feel like they can help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Thank you, it is good to hear about better doctors!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,056
    • Most Online (within 30 mins)
      7,748
    Paul 777
    Newest Member
    Paul 777
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Oral thrush question

      By knitty kitty · Posted

      Thiamine has antifungal properties.  The body uses thiamine to keep bacteria and yeasts from overgrowth in the digestive system.   Fluconazole use can cause thiamine deficiency.   Supplementing with thiamine in the form Benfotiamine would be beneficial as Benfotiamine promotes intestinal healing.   Thiamine and the other B vitamins tend to be low in Celiac due to malabsorption.  Talk to your doctor about supplementing vitamins and minerals.
    • Scott Adams
      Nutrient deficiencies despite normal MARSH and strict gluten-free diet

      By Scott Adams · Posted

      Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack, but it doesn't mean your gut has fully healed or that other issues aren't at play. The inflammation from your newly discovered milk and egg allergies is a huge clue; this constant allergic response can create a low-grade inflammatory environment that severely hampers nutrient absorption, effectively creating a "leaky gut" scenario independent of celiac damage. This is likely why your iron stores deplete so rapidly—your body is both unable to absorb it efficiently and may be losing it through inflammation. While the functional medicine path is expensive, it's clearly providing answers and relief that traditional gastroenterology, focused solely on the gluten-free diet and biopsy results, is missing. To move forward, continue the gut-healing protocols your functional doctor recommends (perhaps exploring alternative options to glutamine that won't irritate your cystitis), maintain your strict avoidance of all allergens and irritants, and know that true healing is a multi-faceted process. You might seek a second opinion from a different gastroenterologist who is more knowledgeable about non-responsive celiac disease and the complex interplay of food allergies and micronutrient absorption, but your current path, while costly, seems to be leading you toward the steady health you need.
    • knitty kitty
      Blood results

      By knitty kitty · Posted

      Have you had a DNA test to look for Celiac disease genes?  If she doesn't have any celiac specific genes, look for another explanation.  If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing.  All first degree relatives (mother, father, siblings, children) should be genetically tested as well.   Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency.  Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests.  
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me
    • RMJ
      Blood results

      By RMJ · Posted

      When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy. 
×
×
  • Create New...