Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Chance I Have Celiac's?


Comet

Recommended Posts

Comet Newbie

Hi,

My name is Cydney, and I just came across this board today after doing a search of Celiac's. I am 16 years old & am from Long Island, New York.

The last few months I've constantly have had stomachaches and a lot of reactions to food I normally wouldn't. Like, after eating my sandwhich at school, I would have horrible cramps and stomchaches. When I eat a bagel for breakfast, a few hours later I will feel terrible. Lately, it just seems like regardless of what I eat, will come out shortly after. Aside from these symptoms, some irritableness, and constantly being tired (But that could also have to do with having a 16-year old's schedule), there's not much else to say. I don't have the skin thing that I've seen that is a possible symptom for Celiac's.

Is there a possibility I could have Celiac's? Or what? I don't get why I can't keep any food inside of me. I haven't lost any weight, maybe I've even gained a few pounds (we had a terrible winter, LOL), and I am about average weight to begin with.

I hope someone can help me.

Thanks in advance!

-Cydney-


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Comet Newbie

Hi,

My name is Cydney, and I just came across this board today after doing a search of Celiac's. I am 16 years old & am from Long Island, New York.

The last few months I've constantly have had stomachaches and a lot of reactions to food I normally wouldn't. Like, after eating my sandwhich at school, I would have horrible cramps and stomchaches. When I eat a bagel for breakfast, a few hours later I will feel terrible. Lately, it just seems like regardless of what I eat, will come out shortly after. And my tummy always makes these miserable, and sometimes embarrasing, noises. Aside from these symptoms, some irritableness, and constantly being tired (But that could also have to do with having a 16-year old's schedule), there's not much else to say. I don't have the skin thing that I've seen that is a possible symptom for Celiac's.

Is there a possibility I could have Celiac's? Or what? I don't get why I can't keep any food inside of me. I haven't lost any weight, maybe I've even gained a few pounds (we had a terrible winter, LOL), and I am about average weight to begin with.

I hope someone can help me.

Thanks in advance!

-Cydney-

Guest jhmom

Hi Cydney! Welcome!!! :D

I am not a doctor I can only tell you that your symptoms were very similiar to mine before I was diagnosed with Celiac. I suffered for over a year with abdominal pain, diarrhea, weight loss, (but not all Celiac's loss weight) and a general unhealthy feeling.

You need to be seen by a doctor and get tested through blood-work to check for Celiac's. If you do not care about a doctors diagnosis then you could also try a gluten-free diet for a couple of weeks/months to see if you improve. Personally I could tell a difference within a couple of days.

Hang in there and read all you can on this website, it is very informative. Here are some links that were helpful to me:

gluten-free Product List

Safe and Forbidden Food and Ingredient List

celiac disease Symptoms

Open Original Shared Link

Take Care :D

Comet Newbie

I tried posting this a few days ago, but it never came up --

I am 16 years old & I have been having a lot of stomach "issues." As of late, it seems as if regardless of what I eat, it will come out a short time later, and will cause a lot of discomfort throughout the day. Last week, I had a lot of BMs when I got home from school, (though less in the last two days), but I still have had stomachaches & abdominal pains. Two days ago, though, after I ate lunch (a sandwich & peanut butter cookies), I had an immense pain, and felt very nauseous, and I felt light-headed & over-heated. Gas has been an issue, too, and when I'm in school, obviously I can't let it out whenever I want (LOL!)... Am I over-analyzing a stomach virus? Or could this be Celiac's??? I don't have any other non-gastrointestinal symptoms, like the skin, stuff (though my skin is so dry & rough, though I haven't heard of that as a symptom and I acknowledge that it could be due to the weather).

I'd appreciate if anyone could let me know if this could be Celiac's?

Thank you very much in advance!

Feel free to e-mail me.

--Comet

Comet Newbie

I tried posting this a few days ago, but it never came up --

I am 16 years old & I have been having a lot of stomach "issues." As of late, it seems as if regardless of what I eat, it will come out a short time later, and will cause a lot of discomfort throughout the day. Last week, I had a lot of BMs when I got home from school, (though less in the last two days), but I still have had stomachaches & abdominal pains. Two days ago, though, after I ate lunch (a sandwich & peanut butter cookies), I had an immense pain, and felt very nauseous, and I felt light-headed & over-heated. Gas has been an issue, too, and when I'm in school, obviously I can't let it out whenever I want (LOL!)... Am I over-analyzing a stomach virus? Or could this be Celiac's??? I don't have any other non-gastrointestinal symptoms, like the skin, stuff (though my skin is so dry & rough, though I haven't heard of that as a symptom and I acknowledge that it could be due to the weather).

I'd appreciate if anyone could let me know if this could be Celiac's?

Thank you very much in advance!

Feel free to e-mail me.

--Comet

Comet Newbie

Why is my topic the only one not "pinned"? I'd really like SOMEONE to see this post...

Wish Newbie

Hi Cydney,

You definitely have a lot of the classic Celiac disease symptoms. The lack of the skin problems (dermititis herpetiformis) does not necessarily mean anything. I didn't have the dermititis herpetiformis either, and my tests came back positive. There are many different ways Celiac disease can present itself, so it's really difficult to tell if you have Celiac disease based on symptoms alone.

What you should definitely do is go to your doctor and ask to be tested. Generally, testing first involves getting bloodwork done. If the bloodwork comes back suggestive of Celiac disease, the doctor will typically do an endoscopy to take samples from your small intestine so that the diagnosis can be confirmed (Celiac disease causes abnormalities such as flattened villi that can only be seen if tissue samples are taken). The endoscopy isn't the most pleasant procedure in the world, but it certainly isn't the worst either and the temporary discomfort is definitely better than years of pain due to untreated Celiac disease.

I wouldn't recommend trying to put yourself on a gluten free diet before you see a doctor because if you go for a long enough time without eating gluten, your bloodwork will come back negative and you will never get the official Celiac disease diagnosis. Some people argue that you don't need the official diagnosis as long as following the gluten free diet makes you feel better. It's true that feeling energetic and healthy is a key priority. However, if you have the official diagnosis, it tends to make gluten-free life easier. For example, I was only able to convince my university to allow me to keep a rice cooker in my dorm room by providing them with medical documentation of my Celiac disease diagnosis. There are a number of other situations where a doctor's verification of your medical needs is very helpful, and if you just put yourself on a gluten free diet without trying to get a diagnosis first, you're going to have a more difficult time trying to maintain a gluten free lifestyle. So basically my point is that you should tell your doctor about your symptoms and explain that you want to be tested for Celiac disease. Be prepared to speak up for yourself if the doctor seems unwilling to listen to you about this...there are a lot of good doctors out there, but there are also some bad ones that are not very informed about Celiac disease and do not like having patients suggest diagoses to them. There is nothing wrong with insisting that the doctor at least do the initial bloodwork...that part of the testing is pretty simple and routine, so if one doctor is not willing to order the bloodwork, I would recommend finding another one that will.

I have a bit more to say, but I gotta run to class right now. If you have any questions, though, please do not hesitate to e-mail me.

~wish


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Guest Doct.Giggles

Hey

I think you should really get checked. You could get checked by a simple blood draw. Just talk it over with your doctor. I got digonosed by me complaining all of the time my stomach hurts. So ask. Share the results. And check out my topics. Feel free to e-mail. :P

-Tiffany

tarnalberry Community Regular

It could be, but none of us can tell you for sure. You might want to consider asking for a full celiac panel to be done on a blood sample as a place to start.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748

    AlissaW
    Newest Member
    AlissaW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.