Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing A Derm. This Week!

CeliacFashionista

Recommended Posts

CeliacFashionista Apprentice
CeliacFashionista
Posted

I will be seeing a derm. this thursday to get a prescription for my DH. I am on a short course of prednisone right and it is helping to clear up my skin in the mean time. I was wondering what prescriptions work best for this condition. My DH breakouts vary on my face from cystic like acne- itching little breakouts on my face and all over my body. I am so desperate at this point to clear them up that I will try anything. I have tried the low iodine diet but it is driving me crazy!!!!!! I really need any advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

The only advice I have is to wean off the prednisone slowly. And by that in mean 2x as slow as your doctor tells you to.

Most people have an immediate DH resurgence after going off steroids.

Dapsone is the usual rx for DH. You need to be monitored when you start, since it can have side effects.

Good luck, and I hope you get some relief.

Di2011 Enthusiast
Di2011
Posted

Have you had the DH biopsy? If you haven't been diagnosed by skin biopsy then you may want to insist on it. Then you know for sure and then dapsone may be an option (there are many side effects and liver etc monitoring required). Get as knowledgable about DH as you possibly can about DH before visiting the Dermatologist. If in doubt ring the clinic and ask if the derm has experience with DH. You may want to save your time and money.

This is the worst case senario kind of actions required but don't be afraid to take control of your own skin.

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

Have you had the DH biopsy? If you haven't been diagnosed by skin biopsy then you may want to insist on it. Then you know for sure and then dapsone may be an option (there are many side effects and liver etc monitoring required). Get as knowledgable about DH as you possibly can about DH before visiting the Dermatologist. If in doubt ring the clinic and ask if the derm has experience with DH. You may want to save your time and money.

This is the worst case senario kind of actions required but don't be afraid to take control of your own skin.

I have not hade a biopsy but I am 100% sure this is DH. My derm. is the type of doctor that believes diet does not cause skin issues so he is clueless about this. However, he will prescribe just about anything I ask for and he is the only doctor that I am sure will prescribe me with what I need.

Di2011 Enthusiast
Di2011
Posted

Let us know how the visit goes. Dapsone is the only recorded medication that helps DH. If is generally said that if it works for you then you have DH. But be VERY careful about Dapsone ... read all the warnings and be sure you get the testing required to ensure it isn't destroying something else. Do your homework. And perhaps some concern about mixing the steriod in you system with another big drug like Dapsone???? Make the derm and your pharmacist do his/her homework before you jump in to this mix.

CeliacFashionista Apprentice
CeliacFashionista
Posted
  • Author

I've finally been prescribed the dapsone after having my blood work cleared. Today is my first day taking it and I still have breakouts despite being on 50mg of prednisone. How long does this stuff take to work. I just want to have a normal face already and not have to spend everyday hiding under a hat!!! Ugh

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.