Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Thoughts On How To Protect Against Possible Cc?


Austin GF Family

Recommended Posts

Austin GF Family Newbie

After diagnosis, I have been strictly gluten free for several years and would never consider bringing gluten back into my diet. However, sometimes I grow weary of preparing all of my own meals and would like to occassionally dine in a restaurant or even just try a prepackaged gluten free meal for convenience sake. I am very sensitive to gluten and have gone to great lengths to eliminate it from my diet and environment. When I have tried dining in restaurants, I have had a few bad experiences, so am nervous. I don't believe that the risk of cross contamination can ever be eliminated, only minimized. So, I am wondering if there is any advice regarding what can be done to prepare for or protect against the effects of possible cross contamination or other minimal, accidental gluten exposure. I have wondered if taking an antihistamine beforehand might prevent some of the inflammation. Also, I have seen some products on the market that claim to contain digestive enzymes that will digest the gluten before it reaches the small intestines (CeliacAid is one example). Has anyone tried any of these products?

Socially, I am finding celiac disease to be very awkward, because of this restriction on dining out. I am always bringing food with me everywhere I go and when I travel, I get a place with a kitchen and do all of my own cooking, as well. I feel comfortable doing this because it's the best choice for me, but I know that people think I'm weird when they see a gluten free menu and I pull a sandwich out of my hand bag instead of ordering. But, if my fun evening out is ruined or my trip ends early just because of one mistake in the kitchen, it hardly seems worth it. If there is a safe way to dine out and protect against cross contamination, I'd like to hear about it.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

Thats the million dollar question. I don't think that there is much you can do besides calling ahead and speaking to the chef but that is still risky. I haven't eaten out in 2 years. I just pack all of my own food and bring it everywhere. It's a pain but better than being sick for 2 weeks.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.