Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confussed Can You Help Please?


poppet

Recommended Posts

poppet Rookie

Hello i am poppet a mum to 3 great kids, i have ulcerative colitis and maybe wheat/gluten allergy, i have been having a few problems with things and thought i would drop in to see if you could help me please, this is a long one so be ready...

I have been tested in march for wheat/gluten allergy the specialist who deals with my ulcerative colitis suggested i go wheat/gluten free while i see her next in november...

Fine i said i did as she said and after 2 days i felt miles better, a bit more energy not crampy all the time, go to toilet 3-4 times a day instead of 25 times, i lost 3 and half stone since i have been on it, trouble is it is very expensive...

One bread loaf cost £3.33, ok its a small price to pay for health and worth it but it is the not knowing...

I am anemic so i have to take iron, i know when i am low on iron and start taking it again, so i start taking it last week what normally gives me constipation has given me the opposite..

I phone up the chemist and ask them if they are what free she didnt know gave the number to the manufactuer so i phoned them and they do contain wheat i phoned the chemist back to tell them as they could give some one with a servere reaction anaphalactic shock, again she didnt seem interested...

I phoned my gp and told them they contain wheat, she suggested i phoned up the specialist and ask for my results to be faxed to the gp, the speacilsts secretary couldnt do this i have to wait while november, i mean come on these are my results why cant i have them???

I am so peeved of at the minute, the secretary didnt want to be bothered by me and seemed put out that i phoned up!!!! what a snob i hope she never gets ill, she said all i can say to you is if you have a sandwich you will be ill!!! is she confirming my allergy to wheat or is she safe guarding herself, this is so unreal you have to laugh about it...

So after 7 calls yesterday i am a still none the bloody wiser, and if my gp repeats the test it will come back negative as i have been wheat free for 6 months now!!!

Also does anyone know if cooking oil, has wheat in it, i used to be ok with chips but now i get all crampy if i eat them but if i mash them i am ok, is it the oil?..

So many questions with no one to help me, hope you can love poppet x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I would continue to work on getting those results. You may have to be persistent and you may have to deal with a bad attitude, but keep on it. It's true that being gluten-free for so long will turn up positive. (The tests are looking to a reaction to gluten; if you haven't had any gluten, you can't have had a reaction to it.)

The chips could be fried in the same oil as something that is breaded - if that is the case, they will be contaminated and make you sick.

As for the cost, it seems pretty universal that substitutions for gluten-free food are expensive, because we're a niche market, and there isn't enough demand to keep prices low. It means that it'll be cheaper to do what you can to find foods that are naturally gluten free. This, in turn, may mean more cooking from scratch, but that too is healthier. (Also, and one of our UK members will have to check up on me here, I think that you can get a prescription from the doctor to cover the added cost of specialty gluten free foods.)

Welcome to the board! You'll find a lot of great advice! Most of us are in the US, but there're are a number in the UK who can give you some region-specific advice.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nataliallano posted a topic in Related Issues & Disorders
      0

      Meniers and celiac are they related

    2. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      19

      Inflammation and Menier’s disease link?

    3. - knitty kitty replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      TTG IgA and IGA elevated mildy

    4. - thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      TTG IgA and IGA elevated mildy

    5. - knitty kitty replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      TTG IgA and IGA elevated mildy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,223
    • Most Online (within 30 mins)
      7,748

    nataliallano
    Newest Member
    nataliallano
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nataliallano
      Hi all, I was recently diagnose with menier's after a long year of vertigo, ear pressure, tinnitus and anemia. I went to several specialist in The USA and also in Mex. got all the hearing test and MRI but they cant find much. I started a low sodium diet no caffeine no alcohol, and gluten free. I feel no changes in my symptoms. I have tried 6 months o betahistine and diuretics didn't work. Now I'm completely gluten free and  i have some days better than others but nothing seems to work. I don't feel me.  What else can I do? There is something else I could check like vitamins I'm currently taking Ginkgo Biloba as a supplement. how can I find out why Menier's?
    • nataliallano
      Hi I just recently had being diagnose with Meniers after a long year of vertigo, brain fog, ear pressure, tinnitus and anemia. I went to several doctors in USA and Mexico. Did all the test for my ear/ brain, MRI and nothing comes up. The last doctor gave me a combo with betahistine a diuretic and an anticonvulsive. I almost past out.  Nothing seems to calm my symptoms. I started a gluten free diet and I have some days better than others but I'm completely lost. I don't know where to go next.  What should I do next? 
    • knitty kitty
      It's not allergies.   Segments of the protein in corn, yeast, and dairy resemble segments if the protein gluten.  Our antibodies get triggered on the segments no matter where they are from.  Then the antibodies get really confused and attack our own cells which have segments resembling the  protein gluten in the cell membrane.  Hence, Celiac is an autoimmune disease. Did you have a test for Thyroid Stimulating Hormone (TSH)?   Symptoms of hypothyroidism can be very subtle in the early stages.  
    • thejayland10
      All of my other labs are normal though, CBC, metabolic, dexa scan, vitamin levels, ema, giladin peptide igg iga, etc.  Could other allergies like corn or yeast raise this? Should I have allergy testing done for other things? 
    • knitty kitty
      @thejayland10, The fact that your tTg IgA is slightly elevated after ten years gluten free suggests there's something going on.  We want all the antibodies to go away.  As long as they are around, our body is in a state of inflammation that can have long term deleterious effects outside of the gastrointestinal tract. Have you had your thyroid checked recently?   Hashimoto's thyroiditis can raise tTg IgA antibodies without gluten. Maybe you're getting gluten in your diet or from shampoo/toiletries.  Maybe you've developed an intolerance to other foods, like dairy, oats, corn, or yeast.  One my vitamins used brewer's yeast for a B12 source which, of course, made me ill.  One really has to be a bit of a detective.   Do think about giving the AIP diet a try.  The AIP diet is strict at first, allowing the immune system to calm down.  Later more foods are added back in slowly, checking for possible reactions. 
×
×
  • Create New...