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Associated Symptoms - Please Read


Emilem

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Emilem Apprentice

Just recently diagnosed (confirmed blood test and biopsy) with celiac. I am wondering if any of these symptoms I have been experiencing are characteristic of celiac:

-Edema (swelling/fluid retention) that seems to get worse after eating/drinking fluid

-Warts (on the hand) never had them growing up, until about a year ago. In the past few months they have spread and grown rapidly

Does anyone know if these are typical? I've been on a gluten-free diet for about a week now (strict) and the edema has it's moments where it improves, but I am yet to see relief. I am starting to worry it's associated with something else like a candida infection. I am worried I need to further limit my diet? Any input or experiences greatly appreciated, thanks!


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They're not characteristic but celiac can cause all sorts of crazy stuff. Give the diet more time. You have to get rid of the autoimmune antibodies, then your intestine has to heal. Complete recovery can actually take years if there is a lot of damage. Symptoms usually improve at least to some degree after a couple months on the diet.

Kamma Explorer

Emilem,

Something to consider: I had/have the swelling in my hands, face and ankles. I was recently tested positive for albumin (protein) in the urine which is a sign of kidney disease. Edema is also a symptom of kidney dysfunction.

You might want to ask your doctor to check your protein levels in your serum and urine.

Emilem Apprentice

I have actually had these checked out and no protein in urine which rules out kidney disease, yet the edema still persists :/

Emilem,

Something to consider: I had/have the swelling in my hands, face and ankles. I was recently tested positive for albumin (protein) in the urine which is a sign of kidney disease. Edema is also a symptom of kidney dysfunction.

You might want to ask your doctor to check your protein levels in your serum and urine.

Kamma Explorer

I have actually had these checked out and no protein in urine which rules out kidney disease, yet the edema still persists :/

I'm glad that protein in the urine has been ruled out for you. :)

One of the other things that I have heard people mention is hypothroidism causing edema. Plus, problems with the thyroid is very common in people with celiac.

Emilem Apprentice

I've had thyroid checked as well..... negative :/ i wish i could figure out what's going on ...

I'm glad that protein in the urine has been ruled out for you. :)

One of the other things that I have heard people mention is hypothroidism causing edema. Plus, problems with the thyroid is very common in people with celiac.

MitziG Enthusiast

I know my aunt who is celiac was swelled up like a cartoon fat person her edema was so bad. Even her SCALP was swollen and squishy. Once she went gluten free it was like someone stuck a pin in her. Gluten can DEFINITELY cause edema. Warts? I dunno. But nothing aout celiac surpises me anymore. If someone said they grew two heads from gluten, I wouldn't doubt them!


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Bubba's Mom Enthusiast

Just recently diagnosed (confirmed blood test and biopsy) with celiac. I am wondering if any of these symptoms I have been experiencing are characteristic of celiac:

-Edema (swelling/fluid retention) that seems to get worse after eating/drinking fluid

-Warts (on the hand) never had them growing up, until about a year ago. In the past few months they have spread and grown rapidly

Does anyone know if these are typical? I've been on a gluten-free diet for about a week now (strict) and the edema has it's moments where it improves, but I am yet to see relief. I am starting to worry it's associated with something else like a candida infection. I am worried I need to further limit my diet? Any input or experiences greatly appreciated, thanks!

" Common in Celiac patients.

Edema is characterized by excess extracellular fluid volume. Reduction in plasma proteins and malnutrition in celiac disease cause edema by failing to provide colloid osmotic pressure sufficient to prevent loss of plasma from capilaries into tissues.

Results from low plasma proteins, multiple micronutrient deficiencies, and vitamin C in lower limb edema.

Resolves on a gluten-free diet. Deficiencies that can contribute: copper, EPA, Protein,and vitamins B1, C, K."

From the book Recognizing Celiac Disease by Cleo Libonati

I see no connection to warts, but if your immune system is over taxed it *could* be contributing IMO? I had trouble with skin cancers before going gluten-free so I know Celiac can do weird things to your skin.

Don't restrict your fluids. Be sure to be strict with the gluten-free diet. Maybe add a bit of protein at each meal, or as snacks? (Nuts, hard boiled eggs are good for this) Be sure you're getting enough vitamin C, and a multi-vitamin should cover the others? As you heal, you'll absorb things better and should see improvement.

Best wishes!

Emilem Apprentice

WOW! So much great info..I was beginning to lose hope. Thanks for taking time to provide such helpful info.

" Common in Celiac patients.

Edema is characterized by excess extracellular fluid volume. Reduction in plasma proteins and malnutrition in celiac disease cause edema by failing to provide colloid osmotic pressure sufficient to prevent loss of plasma from capilaries into tissues.

Results from low plasma proteins, multiple micronutrient deficiencies, and vitamin C in lower limb edema.

Resolves on a gluten-free diet. Deficiencies that can contribute: copper, EPA, Protein,and vitamins B1, C, K."

From the book Recognizing Celiac Disease by Cleo Libonati

I see no connection to warts, but if your immune system is over taxed it *could* be contributing IMO? I had trouble with skin cancers before going gluten-free so I know Celiac can do weird things to your skin.

Don't restrict your fluids. Be sure to be strict with the gluten-free diet. Maybe add a bit of protein at each meal, or as snacks? (Nuts, hard boiled eggs are good for this) Be sure you're getting enough vitamin C, and a multi-vitamin should cover the others? As you heal, you'll absorb things better and should see improvement.

Best wishes!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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