Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed W/ Cd -- Addl Allergy Testing?


Maureen73

Recommended Posts

Maureen73 Apprentice

Hi all - I've been (finally) diagnosed w/ celiac disease (and ulcerative colitis). I was wondering if anyone who was diagnosed went for additional testing to determine if there were other allergies to foods, etc. as well??? If so, what type of doctor did you see?

I'm trying to research this disease as much as possible and am finding that there are a lot of diseases, etc. "linked" to celiac disease, so I want to make sure that I don't have anything else (please, no allergy to chocolate!!!). :lol:

Thanks,

Maureen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



musikate Apprentice

Maureen,

True food allergies manifest with typical symptoms of anaphylaxis, eg, hives, constricted throat, wheezing, etc. You would know if you had them. celiac disease is not a food allergy.

Kate

KaitiUSA Enthusiast

Celiac is NOT an allergy. This is why when you go to an allergist they will not be able to test you for celiac by allergy testing. Celiac has it's own separate panel that needs to be done.

For allergy testing find an allergist to do those kinds of tests. Also, places like York labs do testing. The problem is there are many false positives or false negatives that can come with it. For instance, you could not react to one food it shows you high on but react to one that would not show up. If you have a severe allergy you should know ...I, in addition to celiac, have a severe wheat allergy and my throat starts to close up and I feel like I can't breathe, tingling, itching, etc.

If it's a minor one you would be less likely to recognize it and testing can be beneficial for picking it up.

Nevadan Contributor

Regarding related diseases, I recommend a bone density test for osteophorosis. This seems to be one of the strongest correlations.

George

Nevadan Contributor

Regarding related diseases, I recommend a bone density test for osteoporosis. There seems to be very strong correlation with celiac disease. In fact I read that some medical group (AMA?) is now recommending that all patients dx'ed with celiac disease should have the bone density test.

George

Maureen73 Apprentice

Thanks all. My dr did prescribe a Dexa Scan for bone density and prescribed Fosimax for osteoporosis due to the Celiac as well as ulcerative colitis (taking prednisone which can cause bone loss as well).

Maureen73 Apprentice

Kate --

I see you are from Philly. I am moving to South Jersey (Swedesboro area in 2 weeks). Currently in the Princeton area. Do you know of any gluten free restaurants in Philadelphia? I found that PF Changs in Marlton, NJ offers a gluten free menu. Several restaurants in NYC and North Jersey, but I am still searching for some closer to my hometown.

Thanks!

Maureen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,157
    • Most Online (within 30 mins)
      7,748

    Christina Deloyola
    Newest Member
    Christina Deloyola
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.