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Diagnosed W/ Cd -- Addl Allergy Testing?


Maureen73

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Maureen73 Apprentice

Hi all - I've been (finally) diagnosed w/ celiac disease (and ulcerative colitis). I was wondering if anyone who was diagnosed went for additional testing to determine if there were other allergies to foods, etc. as well??? If so, what type of doctor did you see?

I'm trying to research this disease as much as possible and am finding that there are a lot of diseases, etc. "linked" to celiac disease, so I want to make sure that I don't have anything else (please, no allergy to chocolate!!!). :lol:

Thanks,

Maureen


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musikate Apprentice

Maureen,

True food allergies manifest with typical symptoms of anaphylaxis, eg, hives, constricted throat, wheezing, etc. You would know if you had them. celiac disease is not a food allergy.

Kate

KaitiUSA Enthusiast

Celiac is NOT an allergy. This is why when you go to an allergist they will not be able to test you for celiac by allergy testing. Celiac has it's own separate panel that needs to be done.

For allergy testing find an allergist to do those kinds of tests. Also, places like York labs do testing. The problem is there are many false positives or false negatives that can come with it. For instance, you could not react to one food it shows you high on but react to one that would not show up. If you have a severe allergy you should know ...I, in addition to celiac, have a severe wheat allergy and my throat starts to close up and I feel like I can't breathe, tingling, itching, etc.

If it's a minor one you would be less likely to recognize it and testing can be beneficial for picking it up.

Nevadan Contributor

Regarding related diseases, I recommend a bone density test for osteophorosis. This seems to be one of the strongest correlations.

George

Nevadan Contributor

Regarding related diseases, I recommend a bone density test for osteoporosis. There seems to be very strong correlation with celiac disease. In fact I read that some medical group (AMA?) is now recommending that all patients dx'ed with celiac disease should have the bone density test.

George

Maureen73 Apprentice

Thanks all. My dr did prescribe a Dexa Scan for bone density and prescribed Fosimax for osteoporosis due to the Celiac as well as ulcerative colitis (taking prednisone which can cause bone loss as well).

Maureen73 Apprentice

Kate --

I see you are from Philly. I am moving to South Jersey (Swedesboro area in 2 weeks). Currently in the Princeton area. Do you know of any gluten free restaurants in Philadelphia? I found that PF Changs in Marlton, NJ offers a gluten free menu. Several restaurants in NYC and North Jersey, but I am still searching for some closer to my hometown.

Thanks!

Maureen


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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