Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused


amberlink09

Recommended Posts

amberlink09 Apprentice

Hey guys,

I've posted on here a few times in the last week, as I've been seeing a lot of doctors to try to figure out what is going on with me. I've been gluten free for 3 years and Paleo for 7 months now. About 3 weeks ago, my leg went totally numb, and since then it's stayed that way plus tingling/numb hands and feet. It took me 3 doctors, but I finally found one who ran some tests and found out I'm vitamin B12 and D deficient. She then referred me to an immunologist because I get some sort of cold/strep/whatever almost every 2 weeks since I've been sick, so the immunologist ran a metabolic panel, tested my IgA and IgG and my ANA and everything came back fine, except my ANA which was 1:80, but the doctor said it's a low positive so we will wait to see if it develops before we do more testing. About a week ago I started having awful joint pain in my knees, ankles, wrists, and elbows, and I've just been insanely tired. My stomach has also been terrible for about a month now. I'm only 21 and I feel like my body is just fighting me right now. I feel like I'm 80 or something, and the tests have been inconclusive so I just don't know where to go from here. Does anyone have some suggestions, advice, or maybe just uplifting words?

Thanks!

Amber


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

There are connections with autoimmune diseases, once you have one you are more likely to have more. If you are getting joint pain you should get referral to a rheumatologist - they do autoimmune diseases of the connective tissue variety (RA, Lupus, Sjogren's etc)- and your symptoms along with your ANA could point to that.

TeknoLen Rookie

Your doctor may have already checked it but if not, you may want to have her check your thyroid function also. Hypothyroidism can cause tiredness like you describe (although so can many other conditions so this is just one possible cause). Be aware that what some labs call a "normal" TSH score may actually be outside of the more ideal "functional" range. Good luck.

ravenwoodglass Mentor

Just another thought. Do you consume soy products? Soy for me is a no go because it flares my joints and give me tummy issues.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,162
    • Most Online (within 30 mins)
      7,748

    Jean Kemling
    Newest Member
    Jean Kemling
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...