Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi All...am New Here

SensitiveMe

By SensitiveMe
in Super Sensitive People

Recommended Posts

SensitiveMe Rookie
SensitiveMe
Posted

I am Rose. Only recently came back online after being off for several years. I have been reading on this board for the past two weeks. While offline I also read quite a bit about Celiac Disease and Gluten Intolerance.

A bit over 2 years ago and during a stressful time I suddenly became nauseous and my GI tract went into quivering followed by constant spasming and constipation, episodes of very high blood pressures, my hair becoming very thin, my arms and legs tingling, shortness of breath and I steadily lost weight.

The endoscopy showed erosive gastritis but negative for Celiac Disease. After a blood test in which Digestive Disease Dr. said my IGE was very very high she did further blood work and said I was allergic to wheat and corn and that in time I would heal up. Onto an allergist who said I can't be allergic but an intolerant. I also stopped eating anything with soy quite a few years ago as it was causing me to have constant diarrhea. After quitting soy I started making my own bread using a bread flour with a high gluten content so perhaps that may have contributed toward the problem. I was lactose intolerant since my teens and a test now shows severe lactose intolerance. Whatever the problem since I stopped eating wheat a red raised rash I had for at least 20 years near both elbows has totally disappeared. However I still am in a state of constant GI spasming and constipation.

Am just introducing myself and giving background info. I enjoy visiting the forum here. You seem like a very supportive group of people and with a sense of humor. I'm still waiting for my sense of humor to come back :) and hopefully some of yours will rub off on me. Also looking forward to the recipe section. I recently discovered quinoa and love it and eat it just about everyday.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

Welcome to the group! Hope you can find some help and answers here. :-)

And yeah, the recipe section has tons of good ideas!

Bubba's Mom Enthusiast
Bubba's Mom
Posted

Hello and welcome! I'm so glad gluten-free is helping you. Try probiotics for the intestinal spasms. With regular use you should see some improvement?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,598
    • Most Online (within 30 mins)
      7,748
    April Williams
    Newest Member
    April Williams
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Found coffee or coffee pods that contain gluten

      By trents · Posted

      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Found coffee or coffee pods that contain gluten

      By linnylou73 · Posted

      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Thank you! Very helpful.
    • Scott Adams
      Helping child go strict gluten-free and concerns about growth/height

      By Scott Adams · Posted

      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...