Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

30 Plus Polyps Found On Colonoscopy (In Early 30's)


naturegirl

Recommended Posts

naturegirl Rookie

Hello,

I was wondering if anyone else has had polyps found. The gastroenterologist found more than 30 polyps when I had a colonoscopy done (a year and a half ago when I was 31 years old).

Fortunately, they were all hyperplastic and not of the type that tend to be pre-cancerous, after the biopsy. He removed most of them. I have not had a formal celiac diagnosis but was simply wondering if others who are celiac or gluten intolerant also have multiple polyps.

The gastroenterologist did not report anything else unusual (he did not even observe villi damage) except for the fact that my insides were not 'clean' despite having followed all pre-procedure instructions to the letter. This made me wonder if my digestive system was sort of 'slowed down'. Does anyone else feel that they might be processing food slowly? It's an impression that I have about my own digestive system.

Thanks a lot,

Josie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Newbee Contributor

I have not had a colonoscopy yet (just the endoscopy and biopsy that confirmed the celiac). My doc could see the damage in my intestines even before the biopsy results came back. I worry about my colon as my grandmother had colon cancer. I feel like I digest food very quickly instead of slowly. With the D that accompanies many celiacs I think a lot of us have that problem. If I'm lucky it will take at least 12 hours to digest my food but it should really take longer. Did you have symptoms of D or C?

Blue-eyed bandit Apprentice

I am wondering if your like me with constipation before celiac diagnosis rather than text book diarrhea? After I got off all gluten AND milk I became regular. Maybe if you think your digesting too slowly try to eat a lot more vegetables and fruits to speed up the process. Extra water can't hurt either. .

GladGirl Rookie

I am wondering if your like me with constipation before celiac diagnosis rather than text book diarrhea? After I got off all gluten AND milk I became regular. Maybe if you think your digesting too slowly try to eat a lot more vegetables and fruits to speed up the process. Extra water can't hurt either. .

Wow, the number of polyps are quite a few, especially at your age! Guess they will want to check you every 3 - 5 years on that. So, when I was 50, I had my first colonoscopy and I ws not yet diagnosed with celiac disease, but, ummmmm you might have thought that the Dr. should have gotten the big "clue" on this at the time. Like you, she told me I was not "cleaned" out after following all the specific prep required. Hmmmm...yes, we have digestive problems don't we???? Then, I had a couple of hyperplastic polyps as well, and signs of divertiulitis caused by constipation issues over the years. I am now 59 and just diagnosed about 4 months ago and went gluten free. My system is still regulating slowly, but much better, dropped 20lbs so far, edema is lessening as well as muscle inflammation. I never had the "normal" IBS issues with loose bowels and weight loss that they talk about, but was anemic for many years. (iron shots hurt!!) Anyway, thank goodness you have found out these issues earlier in your life. I say that because almost all the organs I can live without are gone in my body...lol! No tonsils or adenoids, no appendix, and no gallbladder....I guess I still have a few I could get rid of!! LOL! But seriously, take care of yourself and hope your journey in this status becomes easier for you. :)

GladGirl Rookie

Also, Naturegirl, I wanted to post a link for you concerning Celiac Constipation information, it has been helping me:

Open Original Shared Link

naturegirl Rookie

Thanks so much for the responses... it is really helpful to just talk these things through with others that have had / are having similar challenges.

I would not say that constipation is a major issue for me. It happens once in a while but is pretty low on the list of 'concerning symptoms'. I posted here (my previous post) about my other symptoms...

I did have D for around 8 months (10x/day) when I first moved to America from Europe, 5 years ago. That is when I went gluten-low again (took me a year to go to strict gluten-free). Then, as I was not experiencing the D when in Europe (and diet was so similar), I suspected something in Colorado water and switched to mineral water. I also did acupuncture and Chinese herbs. The D went away. So, I'm still not clear what made it resolve but I feel very lucky that it did!

As far as this sense of my digestion being 'slowed down'... it is more as though my food just seems to kind of 'sit there' before I digest it... I feel as though my belly area is often swollen and I get nausea very frequently, particularly at night-time. I usually feel better once I go to the toilet.

Good idea to keep eating lots of fresh fruit and veggies... they always make me feel good and I'm a pescetarian so both are 'staples' already. And I do drink lots of water too (have to in Colorado - as so very dry).

Apart from the colonoscopy, the other reason I thought that maybe my system was 'slower' than most... is that I did a 3-day Wilderness Solo a few years back, during which I fasted (apart from the weakness from not eating - I've never felt better!). When I talked to all my other classmates, none of them had needed to go to the toilet during the 3 days, and I had been each day! Just thought that it was kind of weird (having said that, we were supposed to go in strange little bags to lessen the environmental impact, and maybe they didn't want to admit that they hadn't!!!).

Yes, due to get another colonoscopy 5 years after first (when gastroenterologist first saw I had 30 polyps, he said I'd need one every 6 months - but after good results from biopsy he changed it to 5 years).

Anyway, if anyone else has had multiple polyps, that was the main reason I was posting here... to see if there is a connection...

Thanks again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 posted a topic in Related Issues & Disorders
      0

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025

    4. - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

    5. - KelleyJo commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,373
    • Most Online (within 30 mins)
      7,748

    Alexis Parker
    Newest Member
    Alexis Parker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.