Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Really Frustrated!


drewsant

Recommended Posts

drewsant Rookie

I've been doing really well this last month, and staying away from gluten to the best of my knowlege. I've been eating garden salads, and gluten-free dressing, with a plain grilled chicken breast. I've been eating dark chocolate for snacks. I even checked my hand soap and shampoo, even though I thought it was going a little overboard with paranoia since I don't ingest the soap or shampoo, but they are both fine, and gluten-free, and I don't wear makeup. So I'm at a loss as to why I've had diarrhea in the last 3 days.

I had to leave work a 1/2 hour into my shift on Thursday. Made it through Friday-still had diarrhea, just not as bad. Then today, I was in the grocery store, and it just hit me again. I had to leave everything there, and just leave. I haven't even had any dairy, which never bothers me anyway, but I'm getting to the point where I'm getting paranoid about eating anything again, just like I did when I first started this diet.

The whole point to this post I guess is to ask--has any one gone on an elimination diet, where you only eat one food for like a week, then another food for a week, etc, to see if it makes you sick? Is this something I should try?

Or could it be because I started taking prenatal vitamins (gluten-free) about a week and a half ago? But I would think I would have gotten sick before now if it were the vitamins.

I'm just really frustrated and don't know what to do. I don't want to live on salad for the rest of my life. Maybe I should have further testing, maybe it isn't Celiac, but another food allergy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Yep, I've done an elimination diet. At a dozen foods (pork, rice, olive oil, rice, and eight others) for two weeks and then tried one of each of the common allergens every few days... Or at least, that was the plan. The mental/emotional effort of doing that diet did me in. It was far too restrictive and drove me crazy. But I did a variation to learn that I was casein intolerant.

It can be a valuable test to perform, but do plan out how you're going to go about doing it, and make sure to follow the basic rules of eliminating whole food families for at least two weeks before introducing, and not crossing something off the list (thinking it causes no problems) without having put it back in your diet - daily - for at least a week. Use Google to get a bunch of helpful sites to help you design an elimination diet for yourself if you decide to do one.

But I would also ask what other medical tests have been done to rule out a pathogenic or other organic cause?

drewsant Rookie

After about a month of having very severe diarrhea--I mean eating or drinking anything would set me off, and Immodium wouldn't help, I went to the Dr, and he had me tested for different things, because I had recently been on about 3 different antibiotics for a kidney infection until they found one tht worked. He thought maybe it caused another secondary infection in my intestinal tract. Testing ruled that out, and several other things. Every time I get tested, which is usually once a year, they don't find anything, which is why they have always just called it Irritable Bowel Syndrome.

That's why I was wondering if it may be another food I'm allergic or intolerant to, because it seems like an awful lot of people have other intolerances other than just gluten. My doctor wants me to go to an allergist to be tested for several different things, because even he mentioned I could have other allergies going on. I've just been doing really well though, except for the 2 times where I ate gluten and knew it, and got over those episodes within about 3 or 4 days.

Guest BellyTimber

Drewsant, I noticed you mentioned antibiotics, they don't affect everyone equally severely but you may be a person who needs probiotics.

Get a brand that has over 4 billion organisms per capsule. Your bowels will show you what is an adequate and not excessive dose.

Also some live yoghurts have a better dose in them than others - in the UK Rachels and Yeo Valley were reputed to be the strongest when I last read about them some years ago, I don't know which brands you get where you live. If live yoghurt has sugar or sweetener in, that will tend to negate the probiotic element in it.

Also I found that the migraines that I have had since at least 17 years ago when I had a serious infectious illness and which are possibly largely triggered by stress, have probably been causing lots of my upsets because a symptom of migraine is often a digestive shutdown.

Also don't forget to drink water like I've been doing!

HTH

drewsant Rookie
Drewsant, I noticed you mentioned antibiotics, they don't affect everyone equally severely but you may be a person who needs probiotics.

Get a brand that has over 4 billion organisms per capsule.  Your bowels will show you what is an adequate and not excessive dose.

Also some live yoghurts have a better dose in them than others - in the UK Rachels and Yeo Valley were reputed to be the strongest when I last read about them some years ago, I don't know which brands you get where you live.  If live yoghurt has sugar or sweetener in, that will tend to negate the probiotic element in it.

Also I found that the migraines that I have had since at least 17 years ago when I had a serious infectious illness and which are possibly largely triggered by stress,  have probably been causing lots of my upsets because a symptom of migraine is often a digestive shutdown.

Also don't forget to drink water like I've been doing!

HTH

<{POST_SNAPBACK}>

Thanks for the suggestion. At this point, I don't think I can eat dairy without it making me worse, so don't know if yogurt would help. I've tried it before, religiously, and it never made any difference. Once I get over the diarrhea, I'm fine with dairy.

I drink tons of water, because I'm high risk for getting kidney infections due to my disability, so already got that covered!

It's funny, I've only had migraines since I started the gluten-free diet. The Dr. thought it was probably due to the drastic change in diet so quickly.

bluefin Newbie

well

i have not been on a diet so far

but i have heard a lot about atkins diet

search on google and you will find a lot on atkins diet

thanks

drewsant Rookie

Don't think the Atkins Diet would help my situation, but thanks for the suggestion.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PrincessLEah Rookie

maybe you should try allergy testing. I have tons of stuff that make me sick f I eat too much of it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.