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Please Tell Me About The Link Between Lisinopril And Celiac

WitsEnd

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WitsEnd Rookie
WitsEnd
Posted

Hi. I am new here. I've been struggling with an undiagnosed illness over the past year and a half and been to every specialist in town without a firm diagnosis. Actually, every time a see a new doctor I have a new diagnosis: migraines, high blood pressure, anxiety, IBS, severe Vit D deficiency, slight anemia, and so on, but nothing seems to really be the right diagnosis.

My symptoms: sharp headaches, migraines, diarrhea, chest pains, stomach pains after eating, dizziness, vertigo, swollen lymph nodes, blurry vision, tingling in jaw, foggy head, heavy chest, severe gas, tight/painful stomach when I wake, pain in sides/kidney area/sides, sore throat.

I recently heard of a connection between Lisinopril and Celiac, and it just occured to me I started taking that about the same time the symptoms started. I stopped taking it for about a month and still felt bad, but I was still eating gluten during that time. I am back on Lisinopril again but now I'm concerned that's the problem. I can't seem to find much information on the internet though linking the two.

I did have a celiac blood panel, but in reading other threads I think I may not have received the full test. My results:

Anti Endomysial, IgA Negative

Anti Gliadin, IgA 6

Anti Gliadin, IgG 3

Anti tTransglutaminase, IgA 5

Anti tTrasglutaminase, IgG Negative

I have not yet had an EGD. That was the plan but it has taken a while to have this done and in the meantime I decided to try eating gluten free. I have felt remarkably better and most of my symptoms have gone or at least been greatly reduced. I now realize being gluten free will affect the EGD, but I started it on a whim and it was so successful I'm not sure I want to go back on gluten to get an accurate test.

I would appreciate any help you could give me.

Thanks!

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mommida Enthusiast
mommida
Posted

By removing gluten from your diet, you may have eliminated your chances of being diagnosed Celiac or Eosinophilic Esophagitus. Your symptom list fits both disorders.

roxieb73 Contributor
roxieb73
Posted

As far as I know there is NO link to lisinopril and Celiac. (I work in pharmacy) Celiac is a genetic disease. However your symptoms do sound a lot like Celiac. How long have you been Gluten free? I might or might not have an impact. There are folks with much more experiecne that will chime in. Sorry still new here and figuring it out myself.

Roxie

WitsEnd Rookie
WitsEnd
Posted
  • Author

Unfortunately I have been gluten free for 6 Weeks. I had already had the blood test and I honestly didnt think the diet would be that successful in eliminating my symptoms so I thought it was ok to try. Now im not sure I want to try gluten again for the testing.

However, I would like to stop lisinopril if that's a problem.

roxieb73 Contributor
roxieb73
Posted

Unfortunately I have been gluten free for 6 Weeks. I had already had the blood test and I honestly didnt think the diet would be that successful in eliminating my symptoms so I thought it was ok to try. Now im not sure I want to try gluten again for the testing.

However, I would like to stop lisinopril if that's a problem.

Oh no you have a bit of a delima. :( You need to get your doctor to change your lisinopril to something else. As far as the Gluten free. It is not fun AT ALL to go back on it. How important is the testing to you?

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I was at the Mayo clinic in May. I talked with Dr. Murry the head of the GI/Celiac dept. He said they're looking into what medications Celiacs have been on in the past to see if they can find links to Celiac-certain meds.

I had been on Lisinopril but it made me cough and clear my throat a lot. I went off it because of that. My sister had even more severe reactions to it. He said a lot of people don't tolerate it well. It's one that they are looking at, but so far they are still researching it.

Another thing that could be a possibility for you with migraines,etc. is a small intestine bacterial overgrowth. (SIBO) I was tested and was told I had a severe overgrowth. When bacteria is where it shouldn't be it grabs the nutrients from your food and emits toxins that get into your blood stream. Dr. Murry suspected it when I didn't improve much on a very strict gluten-free diet. He said reacting to additional foods is a tip-off too.

If you've taken acid reducing drugs, or PPIs, it's a good idea to ask for hydrogen breath test for SIBO. Acid is one of the things that helps keep bacteria in check. Be sure to take probiotics if you aren't currently. They crowd out the bad guys and aid in digestion. Very important to a distressed gut.

WitsEnd Rookie
WitsEnd
Posted
  • Author

Thank you for the info. I am not sure how important the testing is to me. I think I accidentally ate gluten yesterday or today because I'm feeling really sick right now. All the symptoms are coming back very strong. And I was doing so well! Finally feeling good for the first time in months, I almost forgot how sick I was. There's no way I could go back to being sick every day...this is miserable!

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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