Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge


Kazza40

Recommended Posts

Kazza40 Newbie

Hi I am new to this forum. My father is a Celiac and about 7 years ago I started getting bad symptoms that where very much like what my father went through. The worst for me was the big weight loss and nerve symptoms, along with gastro symptoms. So I went on a gluten free diet, that my father suggested and have been now, for 6 years. Now my GP wants me to do the Gluten Challenge due to bad gastro symptoms that have come up again in the last 4 months. This concerns me due to the long period I have been gluten free and will the 4 week challenge show up on the blood tests. The one thing that did come up on my blood tests 7 years ago when my GP did so some blood tests (at that time they did not test me for Celiacs), was an elivataed ANA at 1:320 since being gluten free I have had a negative ANA he wants to see if this goes up again. I just dont know what the need is to find out if it is Celiacs or not. I am scared of eating gluten again, there has been a big improvment in my over the last 6 years, except for the last 4 months. Any help would be great, Many Thanks

  • 4 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Howlin-Radio Newbie

Hi I am new to this forum. My father is a Celiac and about 7 years ago I started getting bad symptoms that where very much like what my father went through. The worst for me was the big weight loss and nerve symptoms, along with gastro symptoms. So I went on a gluten free diet, that my father suggested and have been now, for 6 years. Now my GP wants me to do the Gluten Challenge due to bad gastro symptoms that have come up again in the last 4 months. This concerns me due to the long period I have been gluten free and will the 4 week challenge show up on the blood tests. The one thing that did come up on my blood tests 7 years ago when my GP did so some blood tests (at that time they did not test me for Celiacs), was an elivataed ANA at 1:320 since being gluten free I have had a negative ANA he wants to see if this goes up again. I just dont know what the need is to find out if it is Celiacs or not. I am scared of eating gluten again, there has been a big improvment in my over the last 6 years, except for the last 4 months. Any help would be great, Many Thanks

My advice would be to cut out dairy on top of gluten and see if the digestive problems improve. The proteins can cross-react, sudden increase in dairy intake over a period of time could provoke this response.

Takala Enthusiast

So this doctor wants you to torture yourself for the next 4 weeks so they can run some tests that will likely show you to be "negative" anyway. Like magic your blood tests after 6 years off gluten are going to come back up suddenly positive after only four weeks.

Tell me, has the doctor scheduled his month of August vacation yet or .... ?

:blink:<_<:angry:

ravenwoodglass Mentor

If you were doing well on the diet until 4 months ago look back and see if you can figure out what may have changed. New med, supplement, change in formulation of a food you eat, new restaurant that you are going to, new significant other who eats gluten,new toiletry that contains gluten, new pet or hobby, home remodeling, new job working with gluten items etc.

You don't have to go back on gluten to be tested for other problems as being gluten free will not mask any other illness. We can have other problems crop up or other intolerances can rear their heads. The most common being soy and dairy.

Cara in Boston Enthusiast

I doubt 4 weeks would be long enough - although it is different for everyone. My doctor told me 4-6 MONTHS (I did not last that long.)

The only thing you would need to be eating gluten for is to be tested for Celiac. You already KNOW you have an issue with gluten so I'm not sure why, after 6 years, you need to be tested for it.

If there is a concern that there is another problem - something other than gluten causing your new symptoms - testing for it wouldn't require you to eat gluten (does that make sense?)

My guess (but I'm no doctor) is that you are getting contaminated with gluten from something you have added or changed in the last few months. It could even be a product you have used for years - maybe they suddenly changed the way it was processed or changed the ingredients.

If you think it is gluten - find the gluten.

If you think it is a new and different problem, you don't need to test for gluten intolerance or celiac and therefor do not need to resume eating gluten again.

Cara

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.