Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could It Really Be My Problem?


Mnicole1981

Recommended Posts

Mnicole1981 Enthusiast

I have been gluten free for a month now. I am still having good and bad days, of course, but they are better than they were two months ago.

I am self-diagnosed, because everything came back negative. But if I am getting better, then gluten was my problem, right? This would all be easier if my family just got tested.

My sister has an obvious gluten intolerance. She has hidradenitis supparativa bad on her armpits. My mother has IBS. There are a host of autoimmune diseases in my family.

It feels like it is all in your head when you don't have an official diagnosis or that it is something worse.

I am just feeling weird today.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KMMO320 Contributor

You described me exactly. Yesterday, I found out all my results which were.negative. I told my dr..but I feel.better being gluten-free how do you explain that. She said I cant...all my evidence says you do not have.a.gluten issue. I was not.gluten.free until after testing..

I had a.bad day yesterday and today. Im doubting everything. I.feel like I imagined feeling better without gluten. So now there is nothing to do but challenge myself I guess.

sallyalewis Rookie

I have been gluten free for about 4 months now. I was not tested, but am allergic to so many other things the doc suggested I try removing gluten from my diet. My 2 year Migraine, and 2 year long sinus infection were gone by the end of the first week! I was not tested, but I KNOW when I've been glutened! I have the big D within 1/2, sometimes followed a few days later by terrible muscle and joint ache, and Brain Fog! I have not accidentally glutened myself for 9 days strait now, and have felt great!

It can ONLY be the Gluten!

robertwilburn35 Newbie

they can say whatever they want with what ever test they want. but I went gluten free and feel better. I do not need a dx to treat myself with a gluten free perscription

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.