Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Wondering?

MrsMcC

Recommended Posts

MrsMcC Rookie
MrsMcC
Posted

Hi Folks

I am in the UK currently waiting for the results of my celiac blood screen. I was told the results would take approx 2 weeks!

Just wondering, what do they actually do to the blood when testing it as it seems strange for the results to take so long?

When I spoke to the receptionist at the surgery she said the Celiac tests always take longer than other blood tests, but didnt say why, but said it took her months to get her children diagnosed (sigh)...

In the UK according to website Coeliac.org.uk it depends on the lab, which test they do (they can do either or both) I have no idea what tests they are doing on my blood!

Tissue transglutaminase antibody ('tTGA')

Endomysial antibody ('EMA')

And sometimes they will test for IgA. wow this is confusing! Why don't they just test for all and have done with it in one go? (I am so new to this so probably a totally silly question!)

I think whatever the result, I will ask directly what has been tested, otherwise I could get a negative dx without knowing if all options were explored. My, this is tough!

Thanks all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MitziG Enthusiast
MitziG
Posted

I can't tell you what they do it- my guess is they have to send it to a specific lab as I know in the States only a few labs do certain celiac tests, so it can take a bit longer.

Make sure you request a copy of your lab work actually, and post your results here. We can tell you if any tests were left out. It is a good idea to have your initial results anyway, so you have a baseline down the road if issues are not resolving on a gluten-free diet.

MrsMcC Rookie
MrsMcC
Posted
  • Author

Thanks, that's a good idea! From what I have read here, there are a lot of people who know a lot about interpreting results! Which is great, because you usually get just a "negative" or "positive" but things are not always so cut and dried!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,631
    • Most Online (within 30 mins)
      7,748
    Abdul Sattar
    Newest Member
    Abdul Sattar
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time.  Thankfully he is a fantastic GI, with  a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously!  But I needed my mind to be put at rest as my symptoms didn't seem to go away overnight as I'd hoped they would.  Initially I recall he recommended I went Dairy Free for three weeks, and he told me it would take that time to see an effect.  At that time, even lactose free milk went straight through me, so it is important, I would say, to even avoid that during a Dairy Free trial. My ongoing symptoms were bloating which did respond a bit to that trial.   However, within about 18 months there was a return to a very sore stomach, plus various aches and pains.   It turned out some gluten was sneaking in with my iron supplement (I was buying Floradix instead of Floravital), but I also think the dishwasher, the oven and eating out were contributors, too. Before my numbers normalised (from memory, about eight years!) I had several follow up appointments and a few more tests, but things gradually did get better.  Having read many accounts on this forum over the years, I don't think it is uncommon for symptoms to get a bit worse before getting better, that was certainly the case with me.  Your gut is damaged so you may well have issues digesting other food in the short term. But do try to be as scrupulously gluten free as you can possibly be as a first step, and I'd definitely try a three week Dairy Free trial.   Your villi because they are damaged are not able to create the lactase required to digest dairy at this time so you may well see some improvement if you come off dairy for a while.  Perhaps keeping a food diary of what you eat, where you eat it, whilst a bit onerous to do, will help identify foods that are causing issues.  For a while, apart from oats, I found peas, lentils and soya products hugely aggravating.  Things should calm down.
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
    • Scott Adams
      mystery gluten?

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  I didn't notice any gluten ingredients in Kirkland Almond non-dairy beverage, however it does contain Locust Bean Gum. Some gums may cause IBS-type issues in some people with celiac disease or gluten sensitivity:    
    • trents
      Struggling to get into a good pattern

      By trents · Posted

      Have you had B12 levels checked?
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      For the past few months, I've been taking several supplements (a multi-vitamin, an iron supplement, a vitamin C supplement, and a magnesium supplement), all of which state that they are gluten free on the label.  
×
×
  • Create New...