Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Crazy Symptoms And My Small Wallet


IndiaEileen

Recommended Posts

IndiaEileen Newbie

Hi there,

So, some advice from all across the board would be so appreciated.

Long story short, a few months ago I had a drastic work schedule change and I figured that eating my bowl of cow milk and Wheaties cereal at 2 am was just poor digestion. Well, it never went away, my symptoms of extreme gas, bloating and terrible stomach pains (keeping in mind at this point I was about to be diagnosed with Mono, I had frequent UTI's and some kidney pains every now and again, possible carpel tunnel and tendonitis in wrists AAND back pains).

I thought it might be a dairy thing cause I had major complications with that when I was little. I switched to Almond Milk over my cereal, in my Cream of Wheat (I know, brutal on the wheat!) but still felt terrible no matter how many cups of mint tea I drank!

I moved to Tacoma, got a job with a little better schedule but I was growing really curious about Gluten free. I made the switch after some research on my symptoms (also leaving out cow milk, just occasional ice cream and, yeah yikes, my same amount of cheese intake).

I felt better after a week! I felt a little more spry, dealt with some withdrawals that kicked my bum and now, two months later, I'm even going without my regular old wrist and back pains. I'm a grocery stocker so this was pleasant.

Ok, down to it, I got a nose bleed today when I came home early from work for extreme fatigue (an ongoing thing as of the last few weeks) and shortness of breath (another ongoing for a couple weeks).

I read about the whole Intestine disease thing, my inability to absorb nutrients as well, and noted the iron part as a concern of mine. I started taking a prenatal with iron and my B's and also a vit. D gummy. I got a nosebleed randomly today, small spurt, and I'm not going to lie I spent a good amount of time cradled in my man's arms.

I know seeing a doctor or nutritionist is ideal, I'm not a huge fan of Western medicine practices, but I'm still paying off other hospital bills. Any advice given will be rewarded with virtual hugs and gluten free Kinnikinnik Kinnitoos!

So, in a nutshell:

1) Might I have Celiaac Disease?

2) Might I have anemia?

3) Am I running the risk of low infertility?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes you could be celiac.

Yes that would cause your iron levels to be low.

Yes celiac can result in infertility.

Ideally you should be tested for celiac while you are still eating gluten. If you want testing then go back on gluten right away. There are plenty of folks that are self-diagnosed either because of false negatives on testing, because they went gluten free before testing and became too ill on the challenge to stay on it long enough for testing, couldn't afford testing etc.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    5. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,169
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.