Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Story


Peanutpie

Recommended Posts

Peanutpie Newbie

So I've been having stomach for years. At least 10 years. I'm horribly gassy all the time and go between diarrhea and constipation every day. I'm always bloated and have bad abdominal pains. I have very greasy stools and very smelly. I can't gain any weight and am always exhausted. I also get horizontal lines on my finger nails from time to time which I've been told is a vitamin deficiency.

In 2006 I went gluten-free while nursing my youngest child because she had reflux and my symptoms cleared up a lot. At the time I didn't stop to think Gluten was giving me problems and when I was done nursing started my regular diet.

In 2008 I was hospitalized from my regular doctor and had an abdominal CT done because of bad pain and chronic diarrhea. It showed nothing.

My doctor refused to do any blood tests and said that he wouldn't do a scope to check to celiac. He kept telling me it was IBS and I had to live with it.

In April of this year I started having gi bleeding and was referred to a general surgeon for a scope. They found polyps and took them off but because I was seeing a general surgeon he didn't check celiac. He didn't go beyond my stomach. I have severe reflux too. I've been anemic for over a year (my hemoglobin hanging out at an 11 for over a year)

The general surgeon said he thought I should see a GI doctor because I was beyond what he could help with.

SO yesterday I saw a GI doctor. He listened to everything I had to say and said off of the top of his head I either had A) Celiac or B) IBS. He made it known that because of being a woman and 27 that the IBS was much more likely but he ran a celiac blood panel yesterday (they took 3 vials of blood) Because I had an endoscopy already this year if my blood tests are positive? I can't get another scope this year unless it's an emergency, my insurance won't cover it.

He put me on an anti spasm medication and told me even if the celiac test came back normal that going Gluten Free helps a lot of people with IBS. He kept telling me it was IBS and said that 'if it's celiac I'll sit down with you because we'll have a lot to talk about'

I'll know in a week what my blood tests say but I've decided either way I'll go gluten-free, because it can't hurt and maybe I'll feel better too.

So that's where I am. Researching gluten-free stuff and waiting for the results of my blood tests


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

    2. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      13

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      13

      Severe severe mouth pain

    5. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      12

      gluten free cookie recipes

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,908
    • Most Online (within 30 mins)
      7,748

    NatalieBrowning
    Newest Member
    NatalieBrowning
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
    • Charlie1946
      @cristiana Hi, thank you so much, I will look into those books for sure! And get bloodwork at my next appointment. I have never been told I have TMJ, but I have seen information on it and the nerve issue while googling this devil plague in my mouth. Thank you so much for the advice!
    • Charlie1946
      @trents Thank you so much, I will try that 
    • Florence Lillian
      Peanut Butter cookies - on the crisp side.   approx 20 smallish cookies  1 C  plus 2 tblsp rounded. 'natural' peanut butter ( the kind you have to stir to blend the PB & oils)....  I know, it's a pain!! 1/2 c granulated sugar ....plus 2 tblsp dark brown sugar 1/4 c olive oil... plus 1 tblsp 1 large egg .....and 1 tsp vanilla 2 tsp cinnamon - optional but is yummy with the PB mix the above.  In another bowl mix the following dry ingredients: 1 cup brown rice flour  ( I use this  flour as it leaves no yucky after taste in my cookies & lb cakes..... and coffee cake, I buy it at the "Bulk Barn" here in Canada....... states side try health food stores??? I'm not sure where you can buy bulk food that also carries gluten free flours. 1/2 tsp baking soda.....1/4 tsp salt   (I use the pink sea salt) Mix well or sift, then mix with wet ingredients. heat oven to 350f, line baking sheet with parchment paper. Roll about 2 tblsp dough between your hands, place on cookie sheet and press down  with a fork.   The flatter the cookie the crispier it is.     Bake 13-14 min  When done leave on baking sheet till cool. Cheers, Florence   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.