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I Think I May Have Celiac Disease


onelifefan

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onelifefan Newbie

Hello,

I'm wondering if a gluten-free diet may be the answer to my problems. I'm 37, of Czech, Irish, English, and Polish descent.

I have had IBS for years, and take hyoscyamine twice a day, plus I have acid reflux. I have hypothyroid (on meds) and exzema too. Every day, I feel fatigue, and muscle aches. I have gas and bloating ALL THE TIME, and I often have diarrhea too. I do tend to eat a lot of carbs. I think I look puffy in pictures too. The nonstop gas and bloating is the worst. Does this sound like I could have celiac disease? Nothing seems to help, and I'm starting to wonder if I shouldn't try gluten free and see what happens.

Thank you.

-Melanie


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GottaSki Mentor

Celiac is certainly possible.

Highly suggest getting Celiac Blood Panel before going gluten free as it is often helpful to adhere to a gluten free diet once you are confirmed Celiac.

That being said....blood work can be false negative -- but if positive you have your answer.

Completely removing gluten is not an easy process, but if needed -- completely worth all effort.

Good Luck to you!

GFinDC Veteran

It sounds possible indeed. Then again there are people with no symptoms at all that are found to have celiac. Definitely a good idea to get tested, ask for the full celiac panel. Don't go gluten-free or gluten lite before that testing is complete though, it would mess up the results.

Doctors usually want to do an endoscopy after the blood results if they are positive. Regarless ofhte test results, it is worth doing a trial fo teh gluten-free diet after wards for 3 to 6 months. The tests are not prefect so false negatives are a real possibility.

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      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
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      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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