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bossley

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bossley Contributor

the longer I'm gluten free does the bloating get better and better, or is this how I live the rest of my life?


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Raisingwhirlwinds Newbie

the longer I'm gluten free does the bloating get better and better, or is this how I live the rest of my life?

It should definitely be getting better but if you are less than 3 months on the gluten-free diet then you could try going dairy free for a few months because the damaged villi often doesn't cope well with dairy.

GFinDC Veteran

Our guts can become sensitive to many different foods, not just gluten. So you need to think about that possibility at some point. Generally though, you should improve if you are eating a clean, whole foods diet for 3 to 6 months. How your body responds to celiac disease may be different from mine or other peoples. It took me 4.5 years to get to felling pretty well most of the time. But many people improve faster than that.

Bubba's Mom Enthusiast

This is what may be happening to you:

A hormone (CCK) is made in the duodenum that is sent to the gallbladder and pancreas telling them to perform their digestive duties. For the gallbladder, it means squeeze out some bile. For the pancreas it means release the digestive enzymes.

If you have damage in your duodenum, which is very common with newly DXed Celiac disease, either you aren't making the CCK, or it isn't being sent. This means your foods aren't being broken down like they should be, so they sit in your intestine and sort of ferment, causing gas..and bloating. If you have any gut dysbiosis going on (an imbalance of yeasts, bacteria, etc) it can cause bloating too.

You can talk to your Dr, about this and get testing, if you want to persue it. Most Dr.s don't seem real sympathetic to it,because it isn't life threatening, just uncomfortable. As you heal it should improve on it's own with time.

In the meantime, it's a very good idea to start taking probiotics daily and digestive enzymes too. Those additions can have you feeling more comfortable and help aid your healing. Food that gets broken down better is easier for your intestine to grab the nutrients from.

bossley Contributor

This is what may be happening to you:

A hormone (CCK) is made in the duodenum that is sent to the gallbladder and pancreas telling them to perform their digestive duties. For the gallbladder, it means squeeze out some bile. For the pancreas it means release the digestive enzymes.

If you have damage in your duodenum, which is very common with newly DXed Celiac disease, either you aren't making the CCK, or it isn't being sent. This means your foods aren't being broken down like they should be, so they sit in your intestine and sort of ferment, causing gas..and bloating. If you have any gut dysbiosis going on (an imbalance of yeasts, bacteria, etc) it can cause bloating too.

You can talk to your Dr, about this and get testing, if you want to persue it. Most Dr.s don't seem real sympathetic to it,because it isn't life threatening, just uncomfortable. As you heal it should improve on it's own with time.

In the meantime, it's a very good idea to start taking probiotics daily and digestive enzymes too. Those additions can have you feeling more comfortable and help aid your healing. Food that gets broken down better is easier for your intestine to grab the nutrients from.

Thank you, this makes sense,sounds like a good explanation. I'm doing probiotics,I'll add digestive enzymes. keep in touch

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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