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Testing


Aightball

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Aightball Apprentice

Hello :)

I have been gluten, wheat, and dairy free now since the first part of January 2004. I feel great, have lost weight with excersise, ect, but am wondering something:

I have not had the blood test...and since I have a heck of a cold now, I might be going to the doctor to see if it's upper resperatory. While there, I like to address as many concerns as I can and my doc is always willing to listen.

Should I ask about the celiac test? I have also thought about calling my allergist and talking to him about the test for celiac. I did not test allergic to wheat, but he said that based on my symptoms (I would have diahreea after the first meal of the day, lots of gas, and diahreea was a common event in my life), I should try it. Well, I've tried it and I feel better and so this has prompted me to think about the blood test.

I had an endoscopy, and that biopsy was normal and so was my colonoscopy. So, would it hurt to get the blood test?

-Kel


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angel-jd1 Community Regular
I have been gluten, wheat, and dairy free now since the first part of January 2004.

Since you have not been ingesting gluten, your body won't be producing antibodies for the gluten. Therefore your blood tests will come back negative. In order to get the testing, you need to be eating gluten products. Best of luck!!

-Jessica

:rolleyes:

SadiesMomma Apprentice

I found a link to a website I found online for a place called Entrolab that does celiac disease testing amongst other tests that you can do in the privacy of your own home and send off as a stool sample. They poop it properly so it isnt altered or contaminated or spoil so to speak. The test sounds like a promise because you do not have to ingest gluten to get accurate results.

I dont know about you but I donthave the guts or the time to sit in a bathroom all day in pain practically dying just to get a positive result. Ive heard youd have to eat gluten (about 4 slices of bread a day) in order to get the right amount to damage the villi enough for accurate results... I think thats bull. I have a daughter that I have to raise.. I cant sit in a bathroom all dang day!

Here is the link. Im giong to do it as soon as i get the money. Ill let you alll know how it goes.

Open Original Shared Link

this second link it directly to ordering the tests...

Open Original Shared Link

This is the one I am doing: Gluten Sensitivity Stool and Gene Panel Complete

(Plus Free Milk Sensitivity Stool Test) It will cost a pretty penny $349.00, but i need answers!

Good luck!! :D

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    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
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