Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lack Of Appetite


kittty

Recommended Posts

kittty Contributor

When first going gluten-free about four months ago, I felt great. Better than I had in so many years, and it was such a relief. But since being glutened about three weeks ago I can't seem to get back to feeling good again. I got over the initial flu-like feeling, the stomach issues, and the anxiety. But now I have no energy and no appetite. They must be related (no energy in = no energy out), but nothing at all sounds appetizing, and half the stuff I usually eat actually sounds nauseating to eat. I'm trying to force myself to eat, but it's hard.

Has anyone else dealt with this, and did it eventually pass? Could this just be a lingering aftereffect of being glutened?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

My mom has had this issue, unrelated to gluten. She had a stroke and ate something she couldn't chew or swallow well, likely a cookie or chip, and ulcerated her throat. She didn't eat much for a month. Then she had no appetite. Nothing looked, smelled or tasted good. We got a dietician consult & you can see if this might apply to you.

This is the basics of what she said:

When you don't eat much for a while, it affects your taste buds. Things taste odd. Your mental state isn't good because you aren't getting nutrition and protein so you don't want to eat. Your tired, so you don't exercise. If you don't exercise you don't get hungry.

To get it back, you have to force your self to eat. You need to eat a small 2 bite snack every hour. The more calories and protein, the better. 2 grapes is not as good as a piece of cheese, for example. You should add protein to your meals. Extra protein is a key to getting an appetite back. Add calories to what you do eat.

So here are some things we did as examples. Note: my mom can do dairy and gluten

2 bite snacks -

A few nuts

See's chocolate with cream centers

cracker with a nut butter or PB

cookie

chips

Cheezits (from my boys)

Any cookies or truffles my boys make (or I tell her they made)

We add protein powder to her milk and oatmeal. She won't drink the protein shakes but maybe you would?

My dad makes the oat meal with cream instead of milk which adds a lot of calories.

Add olive oil to foods.

Use the full fat version of something.

Add avocado to a snack or sandwich.

Twice baked potatoes with cream, full fat sour cream & cheddar (made skim milk, reduced fate cheese & sour cream for my dad :D )

We found that she ate spicier things & liked them. She usually doesn't like spicy. BBQ sauce on her meat & she thought it tasted better.

Hope this helps.

kittty Contributor

Thanks so much for the advice! I have been eating peanut butter, because it's one of the things that doesn't turn my stomach at the thought of eating it.

It probably is a chain-reaction like that- I wasn't feeling well, so didn't feeling like eating, and now I've just gotten out of the habit of eating.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.