Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Test Results?

coupdecoeur

Recommended Posts

coupdecoeur Newbie
coupdecoeur
Posted

Can anyone help me understand my test results? I was tested for Celiac a while back and the results came back negative, but I'm not sure if my total IgA level was tested or not (I've heard an IgA deficiency can cause a false negative). I'm still having symptoms that may or may not be related to gluten sensitivity - digestive issues, very irregular/no periods, extreme fatigue, brain fog, etc. - it seems to be somewhat better on a gluten-free diet, but it's hard to pin down. I don't have health insurance and so am a bit reluctant to see yet another doctor for yet another round of blood tests to figure out what, if anything, is wrong with me. Here's what I have:

Test: Anti-Human Tissue Transglutaminase IgA ELISA

Value: 0.2 U/ml

Reference range: < 10.3 U/ml

Help?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

That is all they did ? :huh:

One test ? :o

GottaSki Mentor
GottaSki
Posted

Welcome!

Many doctors will only run the tTG IgA as an initial screening. Your's is negative, but that does not rule out Celiac Disease or Gluten Intolerance. Do you know if your doctor ran any Vitamin or Mineral blood tests? Not absorbing nutrients can indicate Celiac Disease.

Since you had some improvement while trying gluten-free, it would be a good idea remove ALL gluten from your diet for at least three months to monitor improvements. Living gluten free is often the best test.

Should you wish to be tested again, you'll need to be eating gluten for some time before testing and will want to get a Full Celiac Panel.

coupdecoeur Newbie
coupdecoeur
Posted
  • Author

Thank you for the help! It was a free celiac screening - none of the doctors I've seen have even suggested a celiac test, so I went on my own - hence the single test.

Since mostly cutting out gluten a couple weeks ago I have felt a bit better and have already had a period, so it seems at least worth pursuing. But I suspect I will want to see a doctor at some point in the near future - anyone have any recommendations in NYC, or have an idea of how much something like this costs out of pocket? Also, I work as a pastry cook and am literally breathing in flour all day - could this be causing problems too?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,904
    • Most Online (within 30 mins)
      7,748
    KellyMarie
    Newest Member
    KellyMarie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lmemsm
      gluten free cookie recipes

      By lmemsm · Posted

      I know it's after the holidays, but it would still be fun to do a cookie recipe exchange on this forum.
    • Sheila G.
      No red meat

      By Sheila G. · Posted

      I did talk to the nurse and she asked who told me no red meat.  I explained the person who called with the results of my blood work.  That was last week.  She told me the doctor was on vacation and would be back this week and she would talk to him and have someone call me this week.  I have not received a call yet.  I will call them back Monday as a reminder.
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.