Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Intolerance Testing (For Casein/soy/etc)


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi All

So, since I keep having new problem foods popping up every other day (exaggerating, but it's getting frustrating), I think it's time I looked into some further allergy/intolerance testing.

I haven't been tested for anything since two negative blood tests for Celiac (technically, I self-diagnosed and went on the gluten-free diet cause I didn't want to suffer longer to get a biopsy, and Celiac runs rampant on both sides of my family).

I am 3.5 years gluten free, and now casein and soy (almost) free.

Does anyone know of any reliable tests for food intolerances? (not allergies)

Do you think it would be a good idea to get allergy testing done as well, just to see if there's anything else going on? (aside from mild hayfever, I don't have any)

Or is a strict elimination diet really the only way to go?

Also, what kind of doctor/specialist would you go through to get these test?

FYI: I'm in Toronto, Canada.

Thanks a bunch

Peg


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Bubba's Mom Enthusiast

Hi All

So, since I keep having new problem foods popping up every other day (exaggerating, but it's getting frustrating), I think it's time I looked into some further allergy/intolerance testing.

I haven't been tested for anything since two negative blood tests for Celiac (technically, I self-diagnosed and went on the gluten-free diet cause I didn't want to suffer longer to get a biopsy, and Celiac runs rampant on both sides of my family).

I am 3.5 years gluten free, and now casein and soy (almost) free.

Does anyone know of any reliable tests for food intolerances? (not allergies)

Do you think it would be a good idea to get allergy testing done as well, just to see if there's anything else going on? (aside from mild hayfever, I don't have any)

Or is a strict elimination diet really the only way to go?

Also, what kind of doctor/specialist would you go through to get these test?

FYI: I'm in Toronto, Canada.

Thanks a bunch

Peg

After going gluten-free I started reacting to other foods. Soy in particular made me nauseated in very small does like vitamin pills, and larger doses gave me projectile vomitting. A few other foods caused reactions too.

I had gotten environmental allergy testing 3 years ago and tested positive to a lot of things. I went back to my allergist after Celiac Dx to get tested for foods.

I didn't react to any foods at all. The allergist said they can test for allergies but not intolerances. The only way to figure it out is to keep a log of what you eat and any symptoms you get.

Most food reactions are a bit delayed so need to have a way of going back and putting the pieces of the puzzle together.

Some of us react to certain foods when our system is enflamed. High salicylate foods get me if I have too many too often.

I was told that reacting to more and more foods can be a sign that there may be small intestine bacterial overgrowth. (SIBO) That might be a good place for you to start? A GI would do this hydrogen breath test.

If that test comes back OK..I'd say watch the top allergens. They're tops for a reason. Also some of us react to nightshades, (tomatoes, potatoes, peppers, and eggplant) and some of us to lectins or salicylates. We are each different, and unfortunately, we have to sort it out ourselves.

Best wishes for finding your answers...

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,586
    • Most Online (within 30 mins)
      7,748

    Hurricansparkles12
    Newest Member
    Hurricansparkles12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.