Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Hashimoto's Disease

Newbee

By Newbee
in Related Issues & Disorders

Recommended Posts

Newbee Contributor
Newbee
Posted

A little over a year of being gluten free and found out my thyroid has now gone bad (hashimoto's disease). I asked for more than just the TSH they wanted to give me. All tests turned out significantly messed up so probably didn't need all of them but I thought it was interesting that thyroid peroxidase antibody came out really high (493 where normal would be less than 35). Clearly my body has been attacking my thyroid after I pulled out the gluten. My mom told me she thought I should find an endocrinologist to manage the disease with instead of my GP who is clueless and quitting as of this week. I've heard most endocrinologists treat diabetes and don't know much about thyroid. For those of you with thyroid issues, what kind doctor do you see? Also anyone know if the generic levothyroxine at Walgreens is gluten free? I'm trying to call the manufacturer but apparently when I called was past their operating hours so have to wait. So I'm curious to know! Thanks all!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

It really doesn't matter if its an endo, GP, or nd as long as s/he treats you to make you feel better rather than to normalize tsh.

Start here for docs in your area. Open Original Shared Link

Keep googling and following links and ask around. Start reading about Hashis, and keep copies of all your labs and dosages and meds. Make notes and keep track of how you feel. Talk to your new doctor about all of it. You'll be able to gauge pretty quickly if you're suited to each other.

Newbee Contributor
Newbee
Posted
  • Author

Thanks Pricklypear1971. I'm not sure which all of my vague symptoms are related to thyroid. My main complaint was thinning hair and heavy periods. Other things I'm not sure if they are unresolved celiac or something else. After trying the initial dose the GP gave me, when should I go back (GP didn't mention going back).

pricklypear1971 Community Regular
pricklypear1971
Posted

Well, at first my doc wanted to see me monthly (with labs each time). I personally thought that was a bit much (I did arrange to get my lab sheets at each visit so labs could be drawn prior to the following visit).

She upped it every month til she started seeing something she liked (not sure what that was). It took at least 6 months for my tsh to move down but I felt much better immediately.

I can tell you right now you need a new doc simply because none of this was discussed, and you're on t4 only. I pushed for combo therapy up front (benefit of mother who is hypo). T4 only can work, but a great number of patients feel better on combo therapy.

You need to start reading about being a thyroid patient.

Newbee Contributor
Newbee
Posted
  • Author

Good to know. My GP is clueless about treating anything beyond a cold. I'm trying to get into see someone who I've heard is good but can't get an appointment until March. What medicine are you on Pricklypear1971 that you like?

pricklypear1971 Community Regular
pricklypear1971
Posted

I've been on synthetic t3/t4 compounded, Armour (before reformulation), Nature-Throid, compounded natural thyroid, and back to Nature-Throid. I'm trying it again because I felt very good on it but had to switch because of a shortage of product a few years ago (big mess).

pricklypear1971 Community Regular
pricklypear1971
Posted

Another idea to find a good doc is to contact your closest compounding pharmacy and ask for a thyroid doc reco. Talk to the pharmacist, unless the person who answers the phone sounds unusually informed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Newbee Contributor
Newbee
Posted
  • Author

Great idea! Thanks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,896
    • Most Online (within 30 mins)
      7,748
    debbiebryant12
    Newest Member
    debbiebryant12
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • ElenaM
      I think I am gluten intolerant

      By ElenaM · Posted

      Hello everyone. I am Elena and am 38 years old. I suspect I have a gluten intolerance even if my celiac panel is ok. I have the following symptoms : facial flushing, Red dots not bumps în face, bloating abdominal distension, hair loss, depression anxiety even with meds and even bipolar. Fatigue extreme to the point of not being able to work. All of these after I eat gluten. Could I have non celiac gluten sensitivity? Thanks anyone else with these symptoms?
    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.