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- numike replied to numike's topic in Food Intolerance & Leaky Gut5is my cleiac disease gone?
69yo M I have had skin cancer basal I use a higher quality Vit D https://www.amazon.com/Biotech-D3-5-5000iu-Capsules-Count/dp/B00NGMJRTE -
- Wheatwacked replied to numike's topic in Food Intolerance & Leaky Gut5is my cleiac disease gone?
Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom. You likely have low vitamin D, another symptom. Unless you get lots of sun. Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies. A lot of people have these symptoms just before an acute phase of Celiac... -
- Peggy M commented on Scott Adams's article in Gluten-Free Foods & Beverages2Are Potato Chips Gluten Free? (+Video)
Uglies are certified gluten free! I always look for that big "G". Was going to a picnic today and brought some with me to have with my new Rustic Oat Bread from B Free sandwich. Bread holds up well in a sandwich.- celiac disease
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- trents replied to numike's topic in Food Intolerance & Leaky Gut5is my cleiac disease gone?
It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever... -
- numike replied to numike's topic in Food Intolerance & Leaky Gut5
is my cleiac disease gone?
Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA
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69yo M I have had skin cancer basal I use a higher quality Vit D https://www.amazon.com/Biotech-D3-5-5000iu-Capsules-Count/dp/B00NGMJRTE -
By Wheatwacked · Posted
Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom. You likely have low vitamin D, another symptom. Unless you get lots of sun. Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies. A lot of people have these symptoms just before an acute phase of Celiac Disease. Each of the symptoms can have multiple causes that are not celiac disease, but when you start having multiple symptoms, and each symptom is treated as a separate disease, you have to think, maybe these are all one cause. celiac disease. There is a misconception that Celiac Disease is a gastrointestinal disease and symptoms are only gastro related. Wrong. It is an autoimmune disease and has many symptoms that usually are disregarded. I made that mistake until 63 y.o. It can cause a dermatitis herpetiformis rash, white spots on the brain. It caused my alcoholism, arthritis, congested sineses, protein spots on my contacts lenses, swollen prostate, symptoms that are "part of aging". You may be tolerating gluten, the damage will happen. Of curiosity though, your age, sex, are you outside a lot without sunscreen? -
It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
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Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA
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Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
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