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Minette

Daughter's 6-Month Follow Up Testing, Confused

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My 7 year old daughter was diagnosed with celiac (by bloodwork and biopsy) in the spring. She went gluten free in June. At her 6-month checkup last week, the doctor did two different gliadin tests (sorry, I can't find the link right now to tell me exactly what they were) as well as tTg.

Gliadin tests were both within the normal range (I don't know if they were elevated when she was initially tested) but the tTg was still high, 138. So obviously we need to be more careful. It's just tough to know when she's been exposed since she's nearly asymptomatic.

My question is, what's the difference between gliadin and tTg, and what does it mean if one is normal and the other is high?

I have searched the internet for a comprehensible answer to this question, but it's all too medical-ese for me. The doctor's nurse was no help -- she really didn't know the answer (despite him being a pediatric celiac specialist) and basically just told me that "We do them both to help us be sure."

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