Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Dh Is Back! Advice?


Pegster

Recommended Posts

Pegster Apprentice

When I received my diagnosis of DH six months ago, I became gluten-free and everything cleared up right away. Suddenly I have the DH on my elbows and I seem to have hives in strange places. I can't trace anything I might have eaten recently. Does anyone know if DH can just flare up even if I've been gluten-free (with very few mistakes) for 6 months? How long does it take the antibodies to go away? How long after a gluten accident does DH appear? I have never been on dapsone but I'm thinking about discussing it with my dermatologist. Advice? Help?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I don't have DH, and I'm sure others who do will respond with some great advice, but thought I'd have a go based on what I've read.

Do carefully check anything that goes in your mouth or on your skin for gluten and the hidden varieties of gluten. It's SO easy to overlook something that we usually don't think about. And, I've read, iodine is important in the process of the IgA deposits creating the skin lesions, so the advice there was to reduce iodine in the diet (particularly cutting out iodized salt) until it clears up.

Pegster Apprentice

I hadn't thought about iodized salt. I have been eating tortilla chips a lot. I guess I have to watch more than gluten. Thanks for responding TIffany.

tarnalberry Community Regular

From what I understand, that's only while there's gluten in your system and DH lesions. Once it's cleared, you don't have to be as careful about iodine any more. But try googling DH and iodine and see what you see for better information than what's left in my brain. ;-)

ponita Newbie

Peggy,

For me the DH appears when I have had a known gluten item. For example,I had a 1/2 of a donut this weekend (sunday afternoon in fact) and on Tuesday evening became awre of the DH rash starting on my arms. So now and in the past my reaction time seems to be 48 hours.

I have been gluten-free since June and can say with very few mishaps ... but this donut on my dinning room table was more than I could handle.

My dermatologist gave me a topical cream to use in case of flareups (Lociod lipocream). My goal was to never need to use the cream. When I broke out this week I went on over yesterday to his office for a biospy to confirm what it was.

I hope you find what casued your DH to flareup.

Melissa

Pegster Apprentice

I'm pretty sure the gluten I got was in some ricola throat lozenges and some teas I was drinking when I had a cold. I didn't even look at the ingredients, because it's my first gluten-free cold! Now I know to be more careful. The DH cleared up pretty well after about a week. Thanks for your replies.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,169
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.