Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Afraid I Won't Be A Mommy


gabrielle

Recommended Posts

gabrielle Contributor

I agree... everyone does have to make their own choices. I'm almost 21, and of course i am not going to have a baby tomorrow but let's face it mistakes happen and I just want to make sure that if that would happen I would be the best "incubator" (so to speak) for a little one.

I just found out that I have an ovarian cyst. I'm a little worried...Cgilsing- i seen that you had the same problem... what should i be expecting in the terms of treatment and so on? Anything you or anyone could tell me would be great ( I live in a small town where doctors are not really on the ball- i have to do a lot of my own research :( )

Oh...I just pray to God I can have a few little babies someday!!!! GOOD LUCK TO ALL OF YOU THAT ARE TRYING!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cgilsing Enthusiast

Hi Gabrielle

Overian cysts are actually a normal occurance. Everyone gets them each month when they ovulate. The problem occurs when the cyst won't let go of your ovary. I have had two cysts removed. One was tennis ball sized and one was orange sized. If your cyst is large like that they may opt to go in and remove it. (Not a big deal...they go in through a cut under your belly button and you are out of the hospital the same day) Some just take care of themselves too. I actually had a cyst rupture a few weeks ago and went in for some tests. They said I have a few more in there, but they are small and will probably take care of themselves. I'm pretty sure that cysts generally don't cause any scaring that would be dangerous to your fertility. So try not to worry too much about them.

The endometriosis is something to watch a little closer. Endometriosis is uterine tissue that has grown in places it shouldn't (like your ovaries or your tubes) It can cause scaring that could be problematic later on. I've had endometriosis and the first thing they do is a laproscopy (the surgury that goes in through your belly button) and they laser off all of the bad tissue they can. After that I went on a treatment called Lupron Depot. It's a fairly new drug and rather expensive but SOOOO worth it! It puts you in menopause for a period of time. I was on it for six months. I won't lie to you it's not fun. The hot flashes are the WORST! Be prepared to be the only person sitting in class in February with a tank top complaining about the heat! However it starves that bad tissue of hormone and it will go away completely. My doctor said it would last for at least 7 years than I may have to do it again. It's been 5...so far so good!

I'm so sorry that you have to go through these things...I know how scary it can be. It will all be alright though. Just keep yourself informed, see your doctor regularly, and know your body.

I hope this was some help. Let us know how everything goes with your doctor!

gabrielle Contributor

Well, i got my results back... I don't really have a "cyst" it's called a dermoid cyst but it's actually a benign tumor. And unfortunately i can not have laparoscopic surgery because the tumor is too big, so i have to have the surgery where they make an incision at the bikini line. Unfortunately, i will not be out the same day and i will have to be off my feet for 2-3 weeks... Im scared to death... but I have to do it.

Thanks for responding back, i appreciate it! gabb

cgilsing Enthusiast

Oh a dermoid cyst. That is different. I have a friend that had one, but she was little when she had it. I think she was 12 when she had it removed. I guess you can have them in different places too, not just your ovaries. Conciquently my friends' was on her ovary too though. I wish I knew more about that so I could offer some help. On they bright side, my friend hasn't had any more cysts since that one was removed (and she said she felt MUCH better after it was removed). I think they told her that she was born with it. I don't know if that is the case for everyone. My thoughts are with you. I hope the surgery goes well and you have a quick recovery. Feel better ok!

Guest BERNESES

Hang in there gabrielle- I have a lot of the same fears as you (I'm 37 and got married in October) but I really believe everything will work out. I was adopted myself so I had always hoped to adopt in addition to having my own. Believe me, adoption is a beautiful thing- I was adopted by the BESt parents in the world. Not that I'm undervaluing having your own children because from what I've heard, it's an experience like no other, but just to know that you have another option is wonderful. Hey, Angelina Jolie's doing it!

jenvan Collaborator

Gab- Sorry to hear about the upcoming surgery--have you scheduled it yet?

Berneses- I think its awesome you were adopted. There are so many kids are there dying for homes ! I have several friends who have adopted, regardless of whether they can have their own children or not...

Tiffany- I'm where you are girl--'do i want kids?' I hope my heart changes over time--my husband would really like to have children...but both of us agree it would be several years out.

And good news on getting pregnant :) A few months ago I was having dinner with a friend who has celiac disease, and she was sharing her own fear of not being able to get pregnant one day (they weren't trying). Well... little did she know she was actually pregnant at that moment !! She was diagnosed w/celiac 2 years ago, but has had some issues with the diet along the way...so it wasn't a fierce gluten-free 2 years. She is 4 months along now and doing well!

On a sweet and also slightly disturbing note :huh: a few weeks ago my husbands sister offered to be a surrogate for me! she has had 3 and was thinking of getting her tubes tied. (she is one of those women who gets pregnant right away and has easy pregnancies)... she said she would wait until we wanted to have kids and would be a surrogate for us. i was thinking--'wow! that is pretty amazing of her! and wow--that would be really weird!' needless to say--i told her to go ahead and get her tubes tied and not wait for me ! :D

  • 2 weeks later...
gabrielle Contributor

thanks again for the replies. My surgery is scheduled for Tuesday.. i can't believe it is only a few days away. has anyone had this kind of surgery before? i am so scared... if anyone has any reassuring info i'd greatly appreciate it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      My Journey Continues some notes

    2. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

    3. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

    5. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating out, avoiding places that can’t confirm safety, and planning ahead for travel is exactly how many people stay well long-term. It’s also very common to discover that even “certified” or restaurant GF pizza doesn’t agree with you, so trusting that pattern makes sense. Overall, this reads like progress, not restriction—and the fact that you’re feeling better most of the time suggests you’re on the right path.
    • Scott Adams
      Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
    • Midwesteaglesfan
      Her results only showed greater then 100 which over 10 is considered positive.  But American standards still recommend the endoscopy to confirm.  And the Dr explained to us both the European and American standards and asked us what we wanted to do.  We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it
    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.