Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Clueless...


lPa1nl

Recommended Posts

lPa1nl Newbie

Well first off, Hi to everyone on the forum, I am new here. I am posting here mainly out of pure hope that I might be able to gain some knowledge. My girlfriend of 4 years and I are planning on moving in together in my house. She was found to have this disease about 16 months ago. Along with her trying to be gluten-free she also has severe problems with sugar and corn products. So lets just say it makes it interesting when we try and go out to eat and or cook something at home. I have become pretty good at reading ingredient labels and scouring the internet for Girlfriend friendly recipes that I can cook for her.

I must say she does post on this forum (Hi Honey!), and that the last 8-12 months she has buckled down and stuck to these new restrictions and is doing great. I try my best to support her in every way I can but I guess its just hard for me to grasp this disease, mainly because I am only allergic to penicillin and have never had any serious health issues like this.

We have agreed that it would be in our best interests to have a gluten-free house. So given the fact that we are going to move into a house together and going to try and have kids. Is there anything you people might think I can do to make it easier on her to continue the progress she is making?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

That is very supportive of you. The best thing to do is keep the house gluten free to ensure she will not get sick. Are you going to follow the diet as well? If not you should mouthwash or something after eating so when you kiss her you do not contaminate her. The best thing you can do is continue to be supportive and encourage her with the progress she is making and help when you can. Coming here you can learn so much info of good gluten free products if you wanted to cook for her and other things...if you have any questions just ask.

lPa1nl Newbie

Yea, I also plan to follow the diet with her. It will make it allot easier if I follow along rather than bring in gluten-free products into the home and possibly contaminate her. I am thinking that especially if we have kids and they to need to be gluten-free. I have made stuffing for her at thanksgiving out of millet bread, so its possible will just take a little bit more effort on my part to help her out.

Guest Leidenschaft

A supportive spouse makes such a huge difference!! :rolleyes: Pat yourself on the back for your efforts so far, and definitely keep checking this site for support and info!

My hubby has been wonderfully supportive through my diagnosis, the grieving, and the change of lifestyle! He even makes sure the wine rack is always topped up (and he makes the wine too!), since I can't share a cold beer with him anymore! :angry::lol:

However, he does not live gluten-free, and that's completely fine too! We have our kitchen cupboards organized (and CLEARLY marked!) as Safe, gluten-free Products ONLY (mainly for inventory purposes, I don't have to hunt for my specialized items), and NOT Safe. There is only one little NOT Safe cupboard, and it's buffered by canned goods so there isn't any cross contamination from his Not Safe cupboard. We also have the Gluten Zone where he has his bread and toaster. I take responsibility to ensure that IF I am in his zone, I am extra careful, although he does clean up after himself quite well! :D The rest of the kitchen is mine to assume gluten-free... however I do keep a vigilant eye on things, especially the shared microwave.

I can honestly say that in 16 months of gluten-free living, I can not blame any gluten incidents on carelessness. :)

Being supportive and understanding when the celiac disease patient DOES get "glutenated" is also very important. He/She may feel like crap (no pun!) for days, or may just be mildly irritable and not even associate it with gluten.

It's a tough job being the SO of the celiac disease patient, sometimes it can be very frustrating, the extra time everything takes, dealing with the ignorance of others, and the occasional pity parties we are prone to... :(

Your "honey" can count herself among the lucky, and should give you a great big HUG! :lol:

Good luck!

kabowman Explorer

I am the only one in our house of 5 and while we have a "mostly" gluten-free house, we keep stuff like regular mac & cheese and frozen pizzas for the kids and hubby. All condiments are off limits to me so those are no problem with cross contamination. We also keep "normal" bread on hand (for the cost issue) which you have to watch. Anyway, I can go for weeks without a problem then all of a sudden, something that should be safe, makes me sick. Maybe the kids used one of the wooden utensils for the butter (soy and corn), maybe, the skillet didn't get clean enough, etc.

Clean out all cabinets as you move - throw away everything with corn and gluten. Keep a separate cabinet for your foods that may make her sick (my cabinet arrangement is the opposite since I am definitly the minority!!!) like cereal.

My husband cooks as much or more than I do and we don't make anything for the family that I cannot eat - if we do, like pizza night, mine goes first so the fumes from the yeast and cheese won't contaminate my pizza. All meals are gluten-free except for the rare sides or bisquits and gravy for one of the kids because, you just can't substitute some things!

Good luck and glad you guys seem to be on the right track...

tarnalberry Community Regular

Keep going as you're doing! You sound like you're very supportive and understanding of the challenges she's facing. The more you cook at home, the more you'll get a good grasp on easy, tasty, fun things to cook at home that are safe. Particularly with corn issues, you may need to do a lot of cooking from scratch, but with practice, it'll be easy to cook from scratch at home without taking hours.

You may want to replace some of the items in your kitchen so she doesn't get any contamination. Definitely replace the toaster and collander, but also look into replacing pots that may be difficult to clean (like cast iron) and wooden spoons.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,923
    • Most Online (within 30 mins)
      7,748

    cmckurtz
    Newest Member
    cmckurtz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.