Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Clueless...


lPa1nl

Recommended Posts

lPa1nl Newbie

Well first off, Hi to everyone on the forum, I am new here. I am posting here mainly out of pure hope that I might be able to gain some knowledge. My girlfriend of 4 years and I are planning on moving in together in my house. She was found to have this disease about 16 months ago. Along with her trying to be gluten-free she also has severe problems with sugar and corn products. So lets just say it makes it interesting when we try and go out to eat and or cook something at home. I have become pretty good at reading ingredient labels and scouring the internet for Girlfriend friendly recipes that I can cook for her.

I must say she does post on this forum (Hi Honey!), and that the last 8-12 months she has buckled down and stuck to these new restrictions and is doing great. I try my best to support her in every way I can but I guess its just hard for me to grasp this disease, mainly because I am only allergic to penicillin and have never had any serious health issues like this.

We have agreed that it would be in our best interests to have a gluten-free house. So given the fact that we are going to move into a house together and going to try and have kids. Is there anything you people might think I can do to make it easier on her to continue the progress she is making?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

That is very supportive of you. The best thing to do is keep the house gluten free to ensure she will not get sick. Are you going to follow the diet as well? If not you should mouthwash or something after eating so when you kiss her you do not contaminate her. The best thing you can do is continue to be supportive and encourage her with the progress she is making and help when you can. Coming here you can learn so much info of good gluten free products if you wanted to cook for her and other things...if you have any questions just ask.

lPa1nl Newbie

Yea, I also plan to follow the diet with her. It will make it allot easier if I follow along rather than bring in gluten-free products into the home and possibly contaminate her. I am thinking that especially if we have kids and they to need to be gluten-free. I have made stuffing for her at thanksgiving out of millet bread, so its possible will just take a little bit more effort on my part to help her out.

Guest Leidenschaft

A supportive spouse makes such a huge difference!! :rolleyes: Pat yourself on the back for your efforts so far, and definitely keep checking this site for support and info!

My hubby has been wonderfully supportive through my diagnosis, the grieving, and the change of lifestyle! He even makes sure the wine rack is always topped up (and he makes the wine too!), since I can't share a cold beer with him anymore! :angry::lol:

However, he does not live gluten-free, and that's completely fine too! We have our kitchen cupboards organized (and CLEARLY marked!) as Safe, gluten-free Products ONLY (mainly for inventory purposes, I don't have to hunt for my specialized items), and NOT Safe. There is only one little NOT Safe cupboard, and it's buffered by canned goods so there isn't any cross contamination from his Not Safe cupboard. We also have the Gluten Zone where he has his bread and toaster. I take responsibility to ensure that IF I am in his zone, I am extra careful, although he does clean up after himself quite well! :D The rest of the kitchen is mine to assume gluten-free... however I do keep a vigilant eye on things, especially the shared microwave.

I can honestly say that in 16 months of gluten-free living, I can not blame any gluten incidents on carelessness. :)

Being supportive and understanding when the celiac disease patient DOES get "glutenated" is also very important. He/She may feel like crap (no pun!) for days, or may just be mildly irritable and not even associate it with gluten.

It's a tough job being the SO of the celiac disease patient, sometimes it can be very frustrating, the extra time everything takes, dealing with the ignorance of others, and the occasional pity parties we are prone to... :(

Your "honey" can count herself among the lucky, and should give you a great big HUG! :lol:

Good luck!

kabowman Explorer

I am the only one in our house of 5 and while we have a "mostly" gluten-free house, we keep stuff like regular mac & cheese and frozen pizzas for the kids and hubby. All condiments are off limits to me so those are no problem with cross contamination. We also keep "normal" bread on hand (for the cost issue) which you have to watch. Anyway, I can go for weeks without a problem then all of a sudden, something that should be safe, makes me sick. Maybe the kids used one of the wooden utensils for the butter (soy and corn), maybe, the skillet didn't get clean enough, etc.

Clean out all cabinets as you move - throw away everything with corn and gluten. Keep a separate cabinet for your foods that may make her sick (my cabinet arrangement is the opposite since I am definitly the minority!!!) like cereal.

My husband cooks as much or more than I do and we don't make anything for the family that I cannot eat - if we do, like pizza night, mine goes first so the fumes from the yeast and cheese won't contaminate my pizza. All meals are gluten-free except for the rare sides or bisquits and gravy for one of the kids because, you just can't substitute some things!

Good luck and glad you guys seem to be on the right track...

tarnalberry Community Regular

Keep going as you're doing! You sound like you're very supportive and understanding of the challenges she's facing. The more you cook at home, the more you'll get a good grasp on easy, tasty, fun things to cook at home that are safe. Particularly with corn issues, you may need to do a lot of cooking from scratch, but with practice, it'll be easy to cook from scratch at home without taking hours.

You may want to replace some of the items in your kitchen so she doesn't get any contamination. Definitely replace the toaster and collander, but also look into replacing pots that may be difficult to clean (like cast iron) and wooden spoons.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,118
    • Most Online (within 30 mins)
      7,748

    Cwbtex
    Newest Member
    Cwbtex
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • captaincrab55
      Hi Colleen H,   I suffered with the pins and needles/burning feeling in my legs and feet for at least  6 years until my Nephrologist figured out that I had to go on a low salt diet.  He said my kidneys weren't strong enough to remove the salt.  The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option.  On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away.  Good Luck and hope this helps.  
    • Colleen H
      Yes this is very frustrating for me ... not sure what to think.  Feels like I'm having reactions to a lot of things  Now applesauce?? I don't understand 😞 
    • Colleen H
      I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle??  Thank you 
    • Colleen H
      Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔  Winter is here.  I had to lower my thermostat because I couldn't take that hot air feeling 😔  Hopefully it goes away soon     
    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.