Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grandparents And Celiacs


Guest Zmom

Recommended Posts

Guest Zmom

Anyone else have to deal with grandparents who refuse to wash their hands after eating gluten?

Even after my Doctor wrote them a letter? Even when their Grandson asks. They think we are exaggerating and his Grandmother even Grabbed and held my son's hand after eating a piece of bread when he asked her to wash her hands. totally frustrated. Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

How rude(if it is on purpose)....I can't believe they would not follow something to help their grandson. This may make them mad but personally I would say..."This can make him very sick and if you can not respect that, as much as we hate to do this, then we will not be allowing him over anymore."

At this point they are blowing it off like its nothing. If they realize that this is serious and if they don't follow it then they won't get to see him then hopefully they would change.

This is just my opinion...there are other ways you could approach it.

Guest nini

Shoot, I have a HUSBAND that forgets to do that...

as far as grandparents go... that's a whole "nuther" can of worms... I don't think they do it intentionally, but they def. expose my daughter to gluten by some of their actions... My mom's house is SOOOOO Not gluten free, even though I've stocked her up with safe snacks and such, they still have an abundance of gluten laden goodies laying around and they will munch them, not wash hands OR MOUTH and will hug and kiss her all the time I'm just wigging the entire time. I feel like I can't relax.

Guest taweavmo3

My parents were alot like that, unitl Emmie got really sick a few weeks ago. They never intentionally gave her gluten or anything, they just didn't understand the seriousness of it. If Emmie broke out in hives or had trouble breathing, it would be easier for them to "get" I think.

Last time Em's spent the night, the next day she was very lethargic, was crying/screaming all day, and wouldn't eat. This lasted for nearly two weeks. So, now they totally get it. They are so good now......she spent the night again last weekend and my parents made a special trip to the store to load up on gluten-free goodies before their outing.

I don't know what I would do if my parents actually refused to comply with washing of their hands.........I guess I'd have to tell them that my kids couldn't come over until they took the disease for the seriousness that it is. My parents didn't do anything intentional, they really just didn't know or they would forget. As hard as it was seeing Emmie so sick, at least it opened my parents eyes to the disease and how much havoc it can cause on such a little body. That was really the only thing that worked.

wclemens Newbie

Okay guys, listen to this...I am Dakota's 60 year old grandma, and it was I who sent away for the $378 spectrum of tests which identified that Dakota has gluten intolerance and allergies to milk and dairy. It was I who spent his first 11 months of life as his primary daycare provider, watching like a guard-dog to make sure he stayed on his diet. Then at 1 year of age his parents put him into preschool and stopped his special diet after a Kaiser doctor gave him a blood test and said he didn't have Celiac. Now I'm keeping him again 1-2 days a week, and can't help but feed him gluten-free, milk and dairy-free foods (I have had the same intolerances since the age of 8).

I am once again creating special foods for Dakota and even leaving them in special containers in the refrigerator at his family's home. I know that no one else in the family realizes that Dakota's eating forbidden foods can have truly drastic effects, but since my symptoms are asthma and wheezing when I eat those foods, they realize that I must stick to my special diet.

It is a day-by-day journey. We must do what we can, no matter how big or small, and these family members are looking ultimately to us for patience, steadfastness, understanding and TOLERANCE. Lord help us to be the examples we can be! I am so glad you are all there. Welda Lou

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,114
    • Most Online (within 30 mins)
      7,748

    Cheryl Elliott
    Newest Member
    Cheryl Elliott
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.