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Sick And Suspicious


MartyrMom2

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MartyrMom2 Rookie

Hey everyone! I am glad to have stumbled onto this site! I really appreciate the wealth of information and the sense of community here. I am a newbie and have posted under a few different topics already. I hope to not repeat myself, but I wanted to share my personal history to see if any of you think my symptoms/diagnoses (please see my signature or other posts) warrant testing for Celiac Disease or not. I am a 34-year-old female, but my health started to deteriorate 7 years ago. In late Sept.'05, I developed what I thought at the time was a stomach virus. I had pretty intense abdominal pain that radiated to my back and diarrhea. I purchased some Imodium and went about my day. My symptoms lasted throughout the day, only to stop the next, and then return again. My symptoms continued so I consulted a gastroenterologist. In Jan. '06, I had an endoscopy and colonoscopy. I was diagnosed with IBS. I left the office with a pamphlet and a RX for Hyoscyamine. My abdominal pain and diarrhea continued for the next seven years (until present day). I finally discontinued the Hyoscyamine in Aug. '07 due to its ineffectiveness. I might as well have taken a placebo. I was diagnosed w/ hypothyroidism in Oct. '08 and put on Synthroid. While I am thankful to have had an astute physician recommend testing my thyroid (I know some women aren't as lucky), I am frustrated that I do not know the cause of my thyroid disease or my IBS. I am curious to know if it is Hashimoto's or not and furthermore whether gluten is the culprit. I have developed additional symptoms over the years, namely unidentified rashes, unexplained bruising, acid reflux, and lactose intolerance. I am slightly overweight and experience constipation as well, but my view is that w/ having an underactive thyroid, these symptoms don't negate Celiac Disease. My latest complaint is sciatica-type back pain. Let's just say my heating pad is my new best friend! What brought me to the suspicion of Celiac Disease or even gluten sensitivity again is that I picked up the latest issue of Woman's World magazine due to the headline grabber, "Sluggish Thyroid?" Inside it stated than an underactive thyroid might be due to an undiagnosed gluten or dairy sensitivity. I have two young daughters and I want to know if there's even the remote possibility that they have a chance to develop this disease. It wouldn't hurt to have some validation either. I know it seems like I've made up my mind, but after years of being treated like a neurotic nutcase, I suffer from self doubt. I would so appreciate any advice/suggestions any of you have to offer. Many thanks for taking the time to read my novel! :)


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shadowicewolf Proficient

It sounds like you might have it. Stay on gluten until all testing has been done, then go off it.

It is also genetic, there are two genes commonly found within 30% of the population that has been noted to be connected to celiac.

But, yes, with your issues, i would suggest going in and asking to have a full celiac panal done (which for the life of me i don't know off the top of my head) and then, should that turn out positive or inconclusive, go for the endoscopy. Regardless of its results, go try the diet.

I too had massive abdomen issues with my "D". It was random and got to the point where i'd have to take pepto bismol just to go out. Oh its just IBS the doctors said /sarcasm.

mushroom Proficient

Here's the full celiac panel of tests. Do be persistent in getting them all -- many doctors will only do the tTG IgA.

  • AGA (antigliadin antibodies)-IgA
  • AGA-IgG
  • tTG (anti-tissue transglutaminase)-IgA
  • EMA (anti-endomysial antibodies)-IgA
  • DGP (deamidated gliadin peptide)
  • Total serum IgA

Get the testing done sooner rather than later - your PCP can order it. The sooner you know the sooner you can start feeling better. Even if your results come back negative you should try going gluten free for at least 3-6 months. And do stay eating gluten until all testing is completed.

Let us know how it turns out. :)

MartyrMom2 Rookie

Thank you, ladies or gentleman?! :unsure: I think I will pursue getting the full panel of blood work this week! Be blessed! :D

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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