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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Could My Symptoms Be Celiac?

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I've struggled for about 2 years on/off with bladder and digestive issues (feelings like recurring UTI's but there's never any cultures in the urine tests). I've had multiple urine tests all coming back negative, at first it was thought to be interstitial cystitis, but then that was cleared. I took prescription Vesicare for a while for it but that didn't help. My bladder was tested to see if its emptying properly and it was cleared. I have possible bladder spasms. My kidneys were also tested and cleared. I've had a blood test recently (not for celiac) with low counts of most everything except high CRPs (attacking something in my body).

I've recently, 6 months ago, started having pretty bad, itchy, red and dry breakouts on my chin and the antibiotic and topical gel from the doctor hasn't helped any.... dermatitis?? I'm not sure. I've had problems digesting protein for about 3 months, I cannot have any protein at all (I'm vegetarian so my protein is soy, pea and rice based) or my stomach gets extremely bloated to the point of discomfort and I get gas and have digestive problems. I couldn't eat dairy but am taking a daily probiotic so its now alright. The past week or so I've been SO lethargic, no matter how much sleep I get, dizzy when I get up sometimes, moody, with a really really foggy head and exhausted muscles. I usually have tons of energy. I have been gluten-free for two days just as a little experiment and I'm feeling a little bit better. I usually eat organic rolled oats for breakfast every morning, but I haven't been doing that and have more energy in the morning, but oats aren't gluten free?

I feel like my skin, my bladder and my stomach issues all have to be related, and the thing I keep coming across is celiacs. Can anyone off the top of their head tell if this sounds like celiac? thank you :)

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It could be celiac, but it could be many other things too.

Vitamin B12 deficiency can cause bladder issues, and a lot of the other things you're describing.

You mentioned that you're vegetarian, but do you eat any animals products such as eggs or yogurt? Vitamin B12 can only be found in animal products or supplements (or processed foods with those supplements in them), so a deficiency is common among vegans and vegetarians.

Have you tried any supplements?

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I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

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I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

Yes it could. B12 def. can be deadly. get tested, then supplement with methylcobolamin, on an empty stomach, the under the tongue sort adds a tiny edge, unfortunately they are compounded to be pleasing to the taste buds, so watch out for the additives.

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    • Hi Matt,  Thanks for taking the time to reply!  I completely agree haha.  Thanks for the links - I'll give them a read over!  I think it was a mixture of the first time travelling with being gluten-free and the added bonus of the language barrier, it made me dread meal times when usually food is the first thing I think about when travelling to new places! Again, I think the planning element was also a factor, not being able to walk past a nice bakery without walking in - why do most Berlin train stations have bakeries in everyone?!?! THE SMELL!!!  Haha, good excuse! Could have used that in the hotel restaurant (arrived late the first night) and the only avail dish was a dry chicken Caesar salad (literally 3 thin slices of chicken, 5 cherry tomatoes and a plate of lettuce).  I am I'll give the website a look over too - thank you! My app's with my consultant are every 6 months, basically was just sent away with no info/advice given and feeling the struggle now that reality has set in that this is for good!  Hope you are well! 
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      https://www.celiac.com/gluten-free/topic/118842-freezer-paper-for-safe-prep-surface/?tab=comments#comment-979071 https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
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