Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Could My Symptoms Be Celiac?


sasharebekah

Recommended Posts

sasharebekah Newbie

I've struggled for about 2 years on/off with bladder and digestive issues (feelings like recurring UTI's but there's never any cultures in the urine tests). I've had multiple urine tests all coming back negative, at first it was thought to be interstitial cystitis, but then that was cleared. I took prescription Vesicare for a while for it but that didn't help. My bladder was tested to see if its emptying properly and it was cleared. I have possible bladder spasms. My kidneys were also tested and cleared. I've had a blood test recently (not for celiac) with low counts of most everything except high CRPs (attacking something in my body).

I've recently, 6 months ago, started having pretty bad, itchy, red and dry breakouts on my chin and the antibiotic and topical gel from the doctor hasn't helped any.... dermatitis?? I'm not sure. I've had problems digesting protein for about 3 months, I cannot have any protein at all (I'm vegetarian so my protein is soy, pea and rice based) or my stomach gets extremely bloated to the point of discomfort and I get gas and have digestive problems. I couldn't eat dairy but am taking a daily probiotic so its now alright. The past week or so I've been SO lethargic, no matter how much sleep I get, dizzy when I get up sometimes, moody, with a really really foggy head and exhausted muscles. I usually have tons of energy. I have been gluten-free for two days just as a little experiment and I'm feeling a little bit better. I usually eat organic rolled oats for breakfast every morning, but I haven't been doing that and have more energy in the morning, but oats aren't gluten free?

I feel like my skin, my bladder and my stomach issues all have to be related, and the thing I keep coming across is celiacs. Can anyone off the top of their head tell if this sounds like celiac? thank you :)

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

It could be celiac, but it could be many other things too.

Vitamin B12 deficiency can cause bladder issues, and a lot of the other things you're describing.

You mentioned that you're vegetarian, but do you eat any animals products such as eggs or yogurt? Vitamin B12 can only be found in animal products or supplements (or processed foods with those supplements in them), so a deficiency is common among vegans and vegetarians.

Have you tried any supplements?

Link to comment
Share on other sites
sasharebekah Newbie

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

Link to comment
Share on other sites
frieze Community Regular

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

Yes it could. B12 def. can be deadly. get tested, then supplement with methylcobolamin, on an empty stomach, the under the tongue sort adds a tiny edge, unfortunately they are compounded to be pleasing to the taste buds, so watch out for the additives.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,053
    • Most Online (within 30 mins)
      7,748

    BethRhoda
    Newest Member
    BethRhoda
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Spacepanther, I found these articles about the connection between Celiac and joint pain. Musculoskeletal Complications of Celiac Disease: A Case-Based Review https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10201087/ And   Intestinal microbiome composition and its relation to joint pain and inflammation https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6814863/ And The gut microbiome-joint connection: implications in osteoarthritis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6903327/ Sounds like it's time to change the diet to change the microbiome.
    • knitty kitty
      @Shireen32,  Take some deep breaths.  Your labs are fine!  Your tTg IgA is so low!  Well done!  Your endomysial IgA is fine.  There's not a level on the endomysial test.  It's just "yes or no" for if you have celiac disease.   No, it's too early to call it refractory. What are you eating?  Please tell us more than meat and veg. Do you consume dairy? Do you consume processed gluten free foods?   Are you taking any prescription medications, herbal supplements, vitamins and minerals?  
    • Spacepanther
      thank you knitty kitty I don't have a vitamin deficiency and I supplement omegas.  Are there other more mild symptoms that co-occur with your joint pain as well @Moodiefoodie? I am suspicious my own joint pain could be related to another autoimmune issue. I am wondering if it is Crohn's or something similar because I've continued to experience some issues despite having normal celiac antibody levels. What have you considered?
    • Scott Adams
      Here are some more publications on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/fertility-pregnancy-miscarriage-and-celiac-disease/ 
    • Sobiha
      Yes, it could be. Anti histamines help with the symptoms but I don't really like to take them long term.  
×
×
  • Create New...